Has your child experienced severe episodes of vomiting after eating infant cereal and/or first foods; or drinking formula? Do you question whether or not a specific food or foods may be contributing to your infant’s worsening symptoms of periodic vomiting, chronic diarrhea, reflux and/or failure to thrive? These symptoms may indicate a need to speak with your child’s doctor about an FPIES evaluation.
Food Protein-Induced Enterocolitis Syndrome (F-PIES) is a type of food allergy affecting the gastrointestinal (GI) tract. Classic symptoms of FPIES include profuse vomiting, diarrhea, and dehydration. These symptoms can lead to severe lethargy, change in body temperature and blood pressure. Unlike typical food allergies, symptoms may not be immediate and do not show up on standard allergy tests. Furthermore, a negative allergy evaluation may delay the diagnosis and take the focus off the causative food. Nonetheless, FPIES can present with severe symptoms following ingestion of a food trigger. Learn More….
August 20, 2014: The FPIES Foundation has established October 14th as Global FPIES Day. Follow our website and social media to learn how you can help observe this first Global FPIES Day!
August 6, 2014:ThriveRx and The FPIES Foundation invite you to join us for a joint webinar:
Advocating for Your Child in the Healthcare System.
Date: Wednesday,August 27th
Time: 12-1 pm EDT
Food Protein-Induced Enterocolitis Syndrome (FPIES) is a rare diagnosis that is often not fully understood, which can make it challenging for parents and medical providers. The purpose of this webinar is to help families navigate the healthcare system by providing advocacy actions, tools, and resources to assist them, and their providers, as they care for their children living with FPIES. Click here to register.
After you register, you will receive a link to join the webinar. If you cannot join us for the live session, register and a link to the recorded webinar will be sent to you.
May 16, 2014: In honor of Food Allergy Awareness Week, we are releasing the latest survey that is part of our ongoing partnership with the NIH-funded Connect program through Patient Crossroads; once again confirming The FPIES Foundation’s commitment to furthering research for this little understood diagnosis. Let’s Connect all of our voices through the FPIES Global Registry today!
May 2, 2014: The month of May is devoted to Asthma and Allergy Awareness. This week, the UK has been bringing awareness to allergies during their National Allergy Awareness Week and our friends at FPIES UK released this beautifully strong video for FPIES Awareness!https://www.youtube.com/watch?v=r3eBopTF4KE
April 1, 2014: The FPIES Foundation is proud to be part of a community that is FPIES Brave. Wear your FPIES Brave when you purchase a piece of Bravelet jewelry from our Foundation’s page. With every Bravelets purchase from our page, $10 will be donated to The FPIES Foundation, to advance our cause for education, advocacy, outreach and research. Show your FPIES Brave colors today!
March 25, 2014: The FPIES Foundation is thrilled to partner with Flower Power Fundraising, an employee-owned company that began as a joint initiative between Gardner’s Supply and Dutch Gardens. By purchasing spring bulbs to beautify your spring gardens, you are supporting the education, outreach and research initiatives of the Foundation. 50% of all sales will be donated to our cause! This season’s fundraiser ends April 25th, 2014!! Read more at: http://fpiesfoundation.org/ongoing-fundraisers/ | The FPIES Foundation
March 10, 2014: The FPIES Foundation Annual Report for 2013 is published, outlining The Foundation’s activities over their 2nd year.
February 28, 2014: The FPIES Foundation participates in several online and social media awareness campaigns for Rare Diseases Day 2014.
February 5, 2014: The FPIES Foundation announces partnership with Sarah’s FPIES Clubhouse. Sarah’s FPIES Clubhouse, a partner organization of The FPIES Foundation, a great place for kids to share fun stories and activities, as well as find support when dealing with the ups and downs of life with FPIES. Sarah’s FPIES Clubhouse is supported by The FPIES Foundation Kids In Action program.
January 31, 2014: World Rare Diseases Day February 28, 2014. Rare Disease Day 2014 focuses on care and encourages everyone in the rare disease community to “Join Together for Better Care”.
January 14, 2014: THE FPIES FOUNDATION INTRODUCING THE ‘KIDS SPOT’
The FPIES Foundation is excited to launch the ‘Kids Spot.’ The ‘Kids Spot’ is designed with young children and their siblings in mind. It’s a place where FPIES is explained in simple terms and offers young children a way to understand this rare allergy and help a loved one suffering from it. It’s also a place where kids can just be kids, a fun interactive way to see that they are not alone.
“FPIES is a diagnosis that affects the whole family,” says Foundation Co-Director Amanda LeFew. “Meal time can be turned upside down, new snack and eating restrictions may be placed on older children, and social engagements where food is present could be limited. In some cases FPIES symptoms continue beyond the toddler years and we feel it’s important for these children to know there are others out there like them. The ‘Kids Spot’ is designed to be a safe haven for these families looking for ways to teach young children about FPIES.” Read more: KIDS SPOT FPIES FOUNDATION PRESS RELEASE….
December 5, 2103: The FPIES Foundation has qualified for a 2013 Top-Rated Nonprofit award from Greatnonprofits. This is a great honor, given less than 10% of eligible nonprofits have received this distinction.
November 20, 2013: FPIES FOUNDATION ANNOUNCES FIRST OF ITS KIND GLOBAL REGISTRY FOR FAMILIES. THE FPIES FOUNDATION GLOBAL REGISTRY OFFERS DOCTORS A VITAL FIRST STEP IN RESEARCHING THIS RARE ALLERGY.
The FPIES Foundation is excited to launch ‘The FPIES Foundation Global Registry’. The registry is a ground-breaking opportunity to directly bring families affected by Food Protein Induced Enterocolitis Syndrome, FPIES, together with doctors and researchers interested in learning more and trying to understand this rare allergy. Read more: GLOBAL REGISTRY PRESS RELEASE