Has your child experienced severe episodes of vomiting after eating infant cereal and/or first foods; or drinking formula? Do you question whether or not a specific food or foods may be contributing to your infant’s worsening symptoms of periodic vomiting, chronic diarrhea, reflux and/or failure to thrive? These symptoms may indicate a need to speak with your child’s doctor about an FPIES evaluation.

Food Protein-Induced Enterocolitis Syndrome (F-PIES) is a type of food allergy affecting the gastrointestinal (GI) tract. Classic symptoms of FPIES include profuse vomiting, diarrhea, and dehydration. These symptoms can lead to severe lethargy, change in body temperature and blood pressure. Unlike typical food allergies, symptoms may not be immediate and do not show up on standard allergy tests. Furthermore, a negative allergy evaluation may delay the diagnosis and take the focus off the causative food. Nonetheless, FPIES can present with severe symptoms following ingestion of a food trigger. Learn More….

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News and Events: 

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badge 2014 Great NonprofitsNovember 5, 2014: The FPIES Foundation has been honored with a prestigious 2014 Top-Rated Award by GreatNonprofits, the leading provider of user reviews about nonprofit organizations.  The Top-Rated Nonprofit award was based on the large number of positive reviews that The FPIES Foundation received – reviews written by volunteers, families of children living with FPIES, and the general public. People posted their personal experience with the nonprofit. For example, one person wrote, “The FPIES Foundation has brought together a wonderful combination of support from others going through the same struggles, as well as expertise from the medical field to provide insight as the knowledge and information grows on how to diagnose and treat children with FPIES. They have put together so many resources to help families in one central place.”  Being on the Top-Rated list gives donors and volunteers more confidence that this is a credible organization. The reviews by volunteers, clients and other donors show the on-the-ground results of this nonprofit. This award is a form of recognition by the community. Read more in 2014 Top-Rated Winner Press Release

Oct. 29, 2014: Be The Voice: help further the reach of Global FPIES Day!  The FPIES Community has the assistance of a congressional representative in making this day as a nationally recognized Health Observance Day already this year! Right now we need *Pennsylvania families especially* to share your story so we can have these letters hand delivered by this representative to Senator Pat Toomey in our efforts to get Congress to recognize Global FPIES Day. Please follow this link http://fpiesfoundation.org/letters-for-advocacy/ and email your letter to contact@thefpiesfoundation.org . We need letters from FPIES Families, their extended families, friends, teachers, and medical professionals.

Oct. 23-25, 2014: The FPIES Foundation exhibits at the Annual NASPGHAN conference, a conference for Pediatric GI health professionals that includes Physicians, Physicians Assistants, Nurses and Dietitians. It was an honor to attend the events providing FPIES materials to these health practitioners vital to our children’s medical care. DSCN5135

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October 14, 2014:  Today, on Global FPIES Day, at The FPIES Foundation, we are proud announce the official proclamation for the day, read more hereThe Proclamation for Global FPIES Day.

October 11, 2014:  The FPIES Foundation participates in FASGMN Food Allergy Resource Fair for the 4th year. Joy Meyer, Co-Director of The FPIES Foundation is on hand to raise awareness to FPIES, and provide CheeCha Puff Samples donated by our partners at CheeCha puffs.

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October 5, 2014: The FPIES Foundation is honored to be among the exhibitors to have a booth at the FARE Walk in Boston.  Amanda LeFew, Co-Director of The FPIES Foundation, greets families and raises awareness to Food Protein Induced Enterocolitis Syndrome, a different type of Food Allergy.  Medical Advisory Board Members Dr. Lee, Dr.Yuan, and Dr.Shreffler are in attendance and meet up with a large group of FPIES Families!

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Oct. 2, 2014: The FPIES Foundation introduces a new webpage for Global FPIES Day on Oct 14th. We are proud to launch a webpage dedicated to everything you need to know. This is a historic first for FPIES families and this webpage has easy ways you can be part of it: http://fpiesday.com/

Sept. 13, 2014:  The FPIES Foundation is once again honored to provide families with FPIES information on at Boston Zoo on a day for families living with Food Allergies sponsored by Boston Children’s Hospital FACET program. Boston Zoo Day 2014 Amanda at Booth Victoria Pic

Sept. 9, 2014:FPIES Foundation Panel Member, Victoria Warren, is Emceeing This Year’s FARE Walk in Boston!  Victoria is a television news reporter with WHDH-TV and the mother to 2 boys, one who lives with FPIES. Victoria assists the Foundation on the Parent Advisory Panel in addition to the Media & Marketing Committee. We are thrilled to stand together with the entire food allergy community in our ongoing efforts to research, treat and cure food allergies.

August 27, 2014: FPIES is a rare diagnosis that is often not fully understood, which can make it challenging for parents and medical providers.  The FPIES Foundation partnered with ThriveRx to present “Advocating for your child the Healthcare system”.  The purpose of the webinar is to help families navigate the healthcare system by providing advocacy actions, tools, and resources to assist them and their providers as they care for their children living with FPIES. Read more at: http://fpiesfoundation.org/advocacy/ | The FPIES Foundation

 

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