Food Protein-Induced Enterocolitis Syndrome (FPIES)

A rare type of food allergy that affects the gastrointestinal tract. Classic FPIES reactions typically occur two or more hours after ingesting the "trigger" food and typically involve profuse vomiting, diarrhea, and can progress to shock. Reactions can be severe and require immediate medical attention.

For Families

We provide the resources and support you need to help you support your child, from nutrition to daily management to emergency care.

For Practitioners

Resources for your clinic; tools to learn more about FPIES and current research

For Kids

Custom resources for kids living with FPIES, and the siblings and friends who support them

Emergency Care

Everything you need to prepare for and to navigate trips to the emergency room

Global FPIES Patient Registry

Share your voice and inspire research by completing medically-backed surveys about FPIES

Reach Out and Connect

Join the private support forum and connect with other families affected by FPIES, worldwide

Has your child experienced severe episodes of vomiting after eating infant cereal and/or first foods; or drinking formula? Do you question whether or not a specific food or foods may be contributing to your infant’s worsening symptoms of periodic vomiting, chronic diarrhea, reflux and/or failure to thrive?

 

These symptoms may indicate a need to speak with your child’s doctor about an FPIES evaluation.

Meet our Team

Powered by parents, The FPIES Foundation was born from the vision of eight families all affected by FPIES, dedicated to changing the lives of future families and the children they support.

Jen Hertsch

Board of Directors

Strives to help the Foundation develop a strategies to grow, in order to further educate and provide resources for patients, families and healthcare professionals in the FPIES community.

Joy Meyer

Executive Director, Treasurer

lives in Minnesota with her husband and their four boys; their youngest has FPIES. As a DTR, she has a love for Nutrition and a passion for helping others. Joy is a Foundation Founding Member.

Amanda LeFew

Executive Director, Medical Liaison

lives with her husband and two daughters in Massachusetts, both girls have FPIES. As an MT-BC, she has a passion for outreach and patient education. Amanda is a Foundation Founding Member.

Medical Support

Medical Advisory Board

The FPIES Foundation is proud to be supported by our Medical Advisory Board, a team of multidisciplinary leaders in FPIES research, treatment, and support.

Questions about FPIES, Answers from our MAB

Meet Our Inspiring Families

"Friendship is born at that moment when one person says to another, 'What? You too? I thought I was the only one.' " ~ C.S. Lewis

Myra's FPIES Story

"It may sound strange, but I can’t describe the relief I felt hearing she would have an 'official' documented diagnosis!"

Our Heroes' Journey

"If I have two pieces of advice to offer you … ALWAYS LISTEN TO YOUR MOMMY GUT INSTINCTS … and… GET DIAGNOSED! Get a support team to help you! This is a long, hard, and weary battle! Our children are our hero’s!"

Our Little Man's Story

Our Little Man's Story

"More support is vital-- more medical research is needed into this rare diagnosis so that other infants do not need to experience such complexities from this diagnosis."

Advocate with the Foundation

SendinBlue Newsletter

Our Foundation Blog

Stay up-to-date on the latest happenings related to life with FPIES

Connect With Us!

Are you in need of resources for your child's school or daycare? Do you need help finding an FPIES-familiar specialist to help support your child? Reach out for resources and support-- we are happy to help you find the tools you need to support your child.

Connect via Postal Mail

P.O. Box 304

Stewartville MN 55976

Contact Us