Executive Director, Medical Liaison
Amanda lives with her husband and two daughters in Massachusetts, both girls have FPIES. As an MT-BC, she has a passion for outreach and patient education. Amanda is a Foundation Founding Member.
We provide the resources and support you need to help you support your child, from nutrition to daily management to emergency care.
Resources for your clinic; tools to learn more about FPIES and current research
Custom resources for kids living with FPIES, and the siblings and friends who support them
Everything you need to prepare for and to navigate trips to the emergency room
Share your voice and inspire research by completing medically-backed surveys about FPIES
Join the private support forum and connect with other families affected by FPIES, worldwide
Has your child experienced severe episodes of vomiting after eating infant cereal and/or first foods, or after drinking formula?
Do you question whether or not a specific food or foods may be contributing to your infant’s worsening symptoms of periodic vomiting, chronic diarrhea, reflux and/or failure to thrive?
These symptoms may indicate a need to speak with your child’s doctor about an FPIES evaluation.
The Medical Nutrition Equity Act (S-1194, HB-2587) is a piece of legislation currently being championed by medical professionals and patient advocacy groups that aims to improve coverage of medical nutrition (such as elemental formula) for individuals affected by a variety of conditions, including FPIES. Learn how you can get involved TODAY!
P.O. Box 304
Stewartville MN 55976