Has your child experienced severe episodes of vomiting after eating infant cereal and/or first foods; or drinking formula? Do you question whether or not a specific food or foods may be contributing to your infant’s worsening symptoms of periodic vomiting, chronic diarrhea, reflux and/or failure to thrive? These symptoms may indicate a need to speak with your child’s doctor about an FPIES evaluation.
Food Protein-Induced Enterocolitis Syndrome (F-PIES) is a type of food allergy affecting the gastrointestinal (GI) tract. Classic symptoms of FPIES include profuse vomiting, diarrhea, and dehydration. These symptoms can lead to severe lethargy, change in body temperature and blood pressure. Unlike typical food allergies, symptoms may not be immediate and do not show up on standard allergy tests. Furthermore, a negative allergy evaluation may delay the diagnosis and take the focus off the causative food. Nonetheless, FPIES can present with severe symptoms following ingestion of a food trigger. Learn More….
February 26, 2015: We are proud one of our parent volunteers Victoria Warren represented FPIES and the Foundation at an event in Boston this week. She shares this with us: “It was an amazing event and so powerful to hear from other families dealing with a different rare disease but having similar fears, struggles and frustrations. It was awesome meeting Peter Saltonstall, the president of NORD. It was also empowering meeting with my state lawmakers and having them genuinely listen to what living with FPIES is like and how changes to formula insurance laws and deductible caps could really help.”
February 25, 2015: We are not alone. FPIES is a rare disease, but 1 in 10 people worldwide suffer from some type of Rare Disease. There are 7000 rare diseases identified, including FPIES. In the U-S, a rare disease is defined as one that affects fewer than 200,000 people. There is power in numbers. This year for Rare Diseases Day, February 28th, we put a face on the 1 in 10.
February 20, 2015:We are #FPIES. We are the #1in10. We are not alone. FPIES is a rare disease, but 1 in 10 people worldwide suffer from from some type of Rare Disease. There is power in numbers. This year for Rare Diseases Day on February 28th, let’s put a face on the 1 in 10. Send us your picture on Facebook and we will add the 1 in 10 hashtag and then publish your photo in our social media pages.
February 8- February 14, 2015:This week isFeeding Tube Awareness Week. Follow Tube Feeding Awareness this week for daily updates on the awareness of those who need a feeding tube to receive their nutrition. Awareness is key!