Has your child experienced severe episodes of vomiting after eating infant cereal and/or first foods; or drinking formula? Do you question whether or not a specific food or foods may be contributing to your infant’s worsening symptoms of periodic vomiting, chronic diarrhea, reflux and/or failure to thrive? These symptoms may indicate a need to speak with your child’s doctor about an FPIES evaluation.
Food Protein-Induced Enterocolitis Syndrome (F-PIES) is a type of food allergy affecting the gastrointestinal (GI) tract. Classic symptoms of FPIES include profuse vomiting, diarrhea, and dehydration. These symptoms can lead to severe lethargy, change in body temperature and blood pressure. Unlike typical food allergies, symptoms may not be immediate and do not show up on standard allergy tests. Furthermore, a negative allergy evaluation may delay the diagnosis and take the focus off the causative food. Nonetheless, FPIES can present with severe symptoms following ingestion of a food trigger. Learn More….
January 31, 2014: World Rare Diseases Day February 28, 2014. Rare Disease Day 2014 focuses on care and encourages everyone in the rare disease community to “Join Together for Better Care”.
January 14, 2014: THE FPIES FOUNDATION INTRODUCING THE ‘KIDS SPOT’
The FPIES Foundation is excited to launch the ‘Kids Spot.’ The ‘Kids Spot’ is designed with young children and their siblings in mind. It’s a place where FPIES is explained in simple terms and offers young children a way to understand this rare allergy and help a loved one suffering from it. It’s also a place where kids can just be kids, a fun interactive way to see that they are not alone.
“FPIES is a diagnosis that affects the whole family,” says Foundation Co-Director Amanda LeFew. “Meal time can be turned upside down, new snack and eating restrictions may be placed on older children, and social engagements where food is present could be limited. In some cases FPIES symptoms continue beyond the toddler years and we feel it’s important for these children to know there are others out there like them. The ‘Kids Spot’ is designed to be a safe haven for these families looking for ways to teach young children about FPIES.” Read more: KIDS SPOT FPIES FOUNDATION PRESS RELEASE….
December 5, 2103: The FPIES Foundation has qualified for a 2013 Top-Rated Nonprofit award from Greatnonprofits. This is a great honor, given less than 10% of eligible nonprofits have received this distinction.
November 20, 2013: FPIES FOUNDATION ANNOUNCES FIRST OF ITS KIND GLOBAL REGISTRY FOR FAMILIES. THE FPIES FOUNDATION GLOBAL REGISTRY OFFERS DOCTORS A VITAL FIRST STEP IN RESEARCHING THIS RARE ALLERGY.
The FPIES Foundation is excited to launch ‘The FPIES Foundation Global Registry’. The registry is a ground-breaking opportunity to directly bring families affected by Food Protein Induced Enterocolitis Syndrome, FPIES, together with doctors and researchers interested in learning more and trying to understand this rare allergy. Read more: GLOBAL REGISTRY PRESS RELEASE
November 14, 2013: Patient Crossroads announces Food Protein Induced Enterocolitis (FPIES) newest Patient Crossroads CONNECT member! Adding FPIES to the rare disease CONNECT registry database.
November 7, 2013: ”FPIES: The Hidden Scourge of GI Food Allergies”. FPIES Foundation MAB member Bailey Koch, RD, CSP, LD and Co-Director Joy Meyer, DTR were interviewed for an article about FPIES in Today’s Dietitian magazine, a leading Nutrition profession magazine!
October 7, 2013:Team FPIES Foundation raises awareness this weekend in the Boston area at the FARE Walk for Food Allergy. Families living with FPIES met in Boston, MA to participate in the FARE walk for “Team FPIES Foundation, raising funds for FARE and awareness for FPIES.
October 4, 2013: FPIES Foundation featured in the “Dietitian’s Corner” in the latest Big Y Living Well Newsletter. Amanda LeFew, Co-Director and Medical Liaison of The FPIES Foundation was interviewed for this informative newsletter article, raising awareness to Food Protein Induced Enterocolitis Syndrome in the general population. The article addresses frequently asked questions such as “Does my Child have FPIES?” and “What should I do if I suspect my child has FPIES”, to “How is FPIES tested?” to bring further awareness to this allergy to its readers.
I didn’t know what FPIES was… now I know.
I didn’t know what an elimination diet was… now I know.
FPIES…Food Protein Induced Enterocolitis Syndrome
Not a typical food allergy. It can take hours before severe symptoms show up.
The good news is, FPIES families are not alone.
Resources, tools and support, to overcome, to educate, encourage, empower, advocate, inspire,…
I didn’t know what FPIES was….now I know…Awareness is key!