Has your child experienced severe episodes of vomiting after eating infant cereal and/or first foods; or drinking formula? Do you question whether or not a specific food or foods may be contributing to your infant’s worsening symptoms of periodic vomiting, chronic diarrhea, reflux and/or failure to thrive? These symptoms may indicate a need to speak with your child’s doctor about an FPIES evaluation.
Food Protein-Induced Enterocolitis Syndrome (F-PIES) is a type of food allergy affecting the gastrointestinal (GI) tract. Classic symptoms of FPIES include profuse vomiting, diarrhea, and dehydration. These symptoms can lead to severe lethargy, change in body temperature and blood pressure. Unlike typical food allergies, symptoms may not be immediate and do not show up on standard allergy tests. Furthermore, a negative allergy evaluation may delay the diagnosis and take the focus off the causative food. Nonetheless, FPIES can present with severe symptoms following ingestion of a food trigger. Learn More….
November 20, 2013: FPIES FOUNDATION ANNOUNCES FIRST OF ITS KIND GLOBAL REGISTRY FOR FAMILIES. THE FPIES FOUNDATION GLOBAL REGISTRY OFFERS DOCTORS A VITAL FIRST STEP IN RESEARCHING THIS RARE ALLERGY.
The FPIES Foundation is excited to launch ‘The FPIES Foundation Global Registry’. The registry is a ground-breaking opportunity to directly bring families affected by Food Protein Induced Enterocolitis Syndrome, FPIES, together with doctors and researchers interested in learning more and trying to understand this rare allergy. Read more: GLOBAL REGISTRY PRESS RELEASE
November 14, 2013: Patient Crossroads announces Food Protein Induced Enterocolitis (FPIES) newest Patient Crossroads CONNECT member! Adding FPIES to the rare disease CONNECT registry database.
November 7, 2013: ”FPIES: The Hidden Scourge of GI Food Allergies”. FPIES Foundation MAB member Bailey Koch, RD, CSP, LD and Co-Director Joy Meyer, DTR were interviewed for an article about FPIES in Today’s Dietitian magazine, a leading Nutrition profession magazine!
October 7, 2013:Team FPIES Foundation raises awareness this weekend in the Boston area at the FARE Walk for Food Allergy. Families living with FPIES met in Boston, MA to participate in the FARE walk for “Team FPIES Foundation, raising funds for FARE and awareness for FPIES.
October 4, 2013: FPIES Foundation featured in the “Dietitian’s Corner” in the latest Big Y Living Well Newsletter. Amanda LeFew, Co-Director and Medical Liaison of The FPIES Foundation was interviewed for this informative newsletter article, raising awareness to Food Protein Induced Enterocolitis Syndrome in the general population. The article addresses frequently asked questions such as “Does my Child have FPIES?” and “What should I do if I suspect my child has FPIES”, to “How is FPIES tested?” to bring further awareness to this allergy to its readers.
I didn’t know what FPIES was… now I know.
I didn’t know what an elimination diet was… now I know.
FPIES…Food Protein Induced Enterocolitis Syndrome
Not a typical food allergy. It can take hours before severe symptoms show up.
The good news is, FPIES families are not alone.
Resources, tools and support, to overcome, to educate, encourage, empower, advocate, inspire,…
I didn’t know what FPIES was….now I know…Awareness is key!