Has your child experienced severe episodes of vomiting after eating infant cereal and/or first foods; or drinking formula? Do you question whether or not a specific food or foods may be contributing to your infant’s worsening symptoms of periodic vomiting, chronic diarrhea, reflux and/or failure to thrive? These symptoms may indicate a need to speak with your child’s doctor about an FPIES evaluation.

Food Protein-Induced Enterocolitis Syndrome (F-PIES) is a type of food allergy affecting the gastrointestinal (GI) tract. Classic symptoms of FPIES include profuse vomiting, diarrhea, and dehydration. These symptoms can lead to severe lethargy, change in body temperature and blood pressure. Unlike typical food allergies, symptoms may not be immediate and do not show up on standard allergy tests. Furthermore, a negative allergy evaluation may delay the diagnosis and take the focus off the causative food. Nonetheless, FPIES can present with severe symptoms following ingestion of a food trigger. Learn More….

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  Sept 5,2017: Staying positive and creating an environment that works is highly significant in our routine.” Read our newest addition to Inspiring Families: More Than Brothers.

 

  Sept. 4, 2017: Boston Zoo Day is this Saturday! Visit http://bchallergy.org/ for more information  
August 30, 2017:We’re Raising FPIES Awareness on The Mighty!  
  August 27, 2017: For 6 years, we at The FPIES Foundation have been taking steps towards greater awareness of FPIES and greater support for affected children and their families. Each and every day we are a voice for FPIES in research, education and advocacy efforts!This Thursday, make your steps noticed! Paint your toenails orange and teal, wear orange and/or teal socks or shoes– for every person that notices your fancy feet, hand them an FPIES awareness card. For every person that tickles your baby’s adorable orange-socked toes, tell them your FPIES “elevator speech.”

All of our steps matter! Our feet may be small, but our steps will be big. Where will your steps spread awareness this Thursday? #stepsforFPIES

  August 17, 2017: Read about it how AltaVoice (formally Patient Crossroads) is bringing the voice of our children further with the Power of the PIN!  
  August 5, 2017: It’s our Anniversary month! All this month, we’ll be asking you to show us your #stepsforFPIES! What steps have you taken for your child? For awareness? Follow along this month as we take #stepsforFPIES! 
  August 1, 2017: Attention FPIES Parents: We have a great opportunity for you to provide feedback about how FPIES affects the life of your child. We invite you to complete a Quality of Life survey. The link is provided below. If you have not already, you will need to register, but the process will only take a couple of minutes. 
https://connect.patientcrossroads.org/?org=fpies  
  July 16 2017: Thank you to Scary Mommy for raising awareness of FPIES! 
  July 14, 2017: We are honored to welcome Dr. Christopher Parrish to the Medical Advisory Board of the FPIES Foundation. Dr. Parrish is Board-Certified in Allergy and Immunology and is an Assistant Professor of Pediatrics and Internal Medicine in the Division of Allergy and Immunology at the University of Texas Southwestern Medical Center. He cares for patients with non-IgE-mediated food allergies in the Food Allergy Center at Children’s Health in Dallas, Texas.  
  July 7, 2017: Neocate is launching a new and improved Neocate Splash range of amino acid-based ready-to-feed formula in September 2017. Neocate Splash will be replacing all Neocate E028 Splash products. For resources to help with this transition, please visit Neocate.com/Splash to register to receive information about the product as it becomes available.