Living with FPIES

I Know Now…

As May began, the FPIES Foundation initiated the Twitter campaign #IKNOWNOWFPIES in honor of Food Allergy Awareness Week. We asked FPIES families to tell us what they know now that they didn’t know when their child was diagnosed. From the first “I know now” post – “I didn’t know that you could have a delayed Read more…

In The News

Rare Diseases Day 2013

Rare Diseases Day International theme for 2013 was “Rare Disorders Without Borders”.  With continued increased awareness, the FPIES community will continue to break down these borders- not only connecting us across miles (and countries) also between patient and practitioner, researcher, schools, childcare, and all aspects of our children’s lives that Read more…

In The News

Feeding Tube Awareness Week 2013

For some children with multiple food allergies such as Food Protein Induced Enterocolitis Syndrome (FPIES), a feeding tube is a necessary means for getting the optimal nutrition necessary for growth. The Feeding Tube Awareness Foundation is “dedicated to providing parents and caregivers with the information needed for day-to-day life with a Read more…