This year for Food Allergy Awareness Week, we join in FARE’s call to our communities–“React with Respect.”
When there is lack of awareness and lack of respect involved in treating FPIES reactions, inadequate care for our loved ones can occur. This can snowball into creating greater stress, as well as increased feelings of isolation and frustration for the child and his/her entire family.
Please explore this page to find resources and tools for advocating in your communities, medical clinics and families for all involved to “react with respect” when encountering medical and social challenges that may be caused by FPIES.
It can be difficult to ask for help. It can be difficult to know how or when to reach out!
Our letter to friends and family, originally written in 2012 and now in video form for 2016, can help to start the conversation among family and friends. Starting the conversation is the first step to raising awareness in our communities!
Join in spreading awareness online by creating a photo frame in canva (you must upload the frame first for canva) or on twibbon. Use the photo frame as your social media profile picture for the week of May 8-14, or for the entire month of May.
Medical professionals can join in the campaign to encourage the medical community to “React with Respect.” Spreading FPIES awareness by presenting inservices, providing FPIES educational materials, and speaking at Grand Rounds can arm other professionals with information essential to appropriately and respectfully responding to children experiencing FPIES reactions. This “REACT” poster, focused on responding to an individual experiencing an FPIES reaction, can help to start the conversation among emergency and other pediatric professionals.
Please share your thoughts by participating in polls found throughout our website. Your input can help us to know where you, your family and your medical providers may need more support! Current polls:
Interested in learning more about different families’ experiences with FPIES, worldwide? Interested in sharing your loved one’s experiences with FPIES? Take part in research– contribute to the FPIES Foundation Global Patient Registry!