We waited about a week and tried the rice cereal with sweet potatoes. Exactly 2 hours later, the vomiting started again. Same exact thing as last time, except the vomiting lasted a little longer.
I knew something had to be wrong. I called the doctor and we got in the next day and were sent to the hospital for an upper GI. Everything was clear, but something was obviously wrong, so they referred us to a GI specialist. We couldn’t get in for over a month, so we just waited and didn’t give her anymore solids. One night, we just decided to try it again. I’m not sure why, but we did. I gave her sweet potatoes (no rice). She was fine. A couple days later, peaches. Perfectly fine. Then it hit me. It was the rice cereal. Not knowing how severe the reactions actually were, we gave her rice cereal again. Like clockwork, the vomiting started. Once she calmed down and went to bed, I googled “vomiting rice cereal” and came across the term FPIES. Wow, it fit PERFECTLY. Right then, I knew that this was it. This is what was going on with our little girl.
I did my research and met a few wonderful moms, who pointed us in the right direction and confirmed my thoughts on the diagnosis, but also told me that getting a diagnosis may be difficult. Danny and I went to our GI appointment, and at the end, he said it was just reflux, and handed us a prescription as he walked out the door. I stopped him and asked him about FPIES and he said it absolutely can’t be FPIES because she didn’t have blood in her stools.
I immediately went back to my amazing moms and they directed us to an allergist who was familiar with FPIES. I called right away, and he diagnosed her within minutes of hearing our story.
Our next big step was heading out to New Jersey to see a doctor and possibly get more information on Brynn’s condition. We switched from a regular Enfamil formula to EleCare Vanilla and we also started a probiotic. She immediately started passing food trials after so many previous fails! EleCare was a lifesaver for us.
We haven’t had any more vomiting reactions, but have had plenty of fails. We consider a food a fail if it causes any pain; whether it be an awful tummy ache, horrible eczema, very disrupted sleep, or awful diapers, including a painful rash. We currently don’t have a pediatrician on-board with the FPIES diagnosis, so our go-to doctor is a functional medicine doctor who really wants to help.
Aside from the limited diet, Brynn is your typical 17-month old! She has such a wonderful personality and is a little social butterfly! She loves her big brothers and wants to do whatever they are doing, including getting into trouble. Chronic illness or not, she is absolutely perfect. We have a strong, beautiful little fighter, who WILL conquer FPIES.
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Page published: June 19, 2012. Copyright © 2012,The FPIES Foundation