Join with The FPIES Foundation through Ongoing Fundraising Looking for ways to spread FPIES awareness? Needing creative fundraising tips? Learn More With every Bravelets purchase from our page, 10% will be donated to The FPIES Foundation, to advance our cause for education, advocacy, outreach and research. Use the code “FPIES” […]

The FPIES Foundation Celebrates 1yr. Anniversary!

NON PROFIT TO SUPPORT PEDIATRIC PATIENTS WITH RARE DISEASE, RE-LAUNCHING WEBSITE FOR ANNIVERSARY, CINCINNATI, OH, AUGUST 27, 2012: The FPIES Foundation, headquartered in Cincinnati, OH, is announcing the launch of their new interactive web site on Monday, August 27, 2012, to celebrate the organization’s one-year anniversary. The organization’s executive board identified a dire […]

Emergency Care Though we hope to avoid reactions as much as possible for our children, they do happen. Emergency care can be required during acute FPIES reactions. From accidental exposures to retrialing foods, a large part of living with FPIES means being prepared. Check out the tools below to help […]

FPIES Medical Literature

Articles to Share with Your Child’s Practitioner FPIES is a clinical diagnosis, which means there are currently no tests to make or confirm the diagnosis. There are no standard treatment protocols, yet. Research and advancements are being made by doctors all over the world to advance the understanding of FPIES […]

Forms and Documents Library FPIES Tools at Home ER and Medical Visits School and Daycare FPIES Tools at Home Creative Tips for Food Preparation for Infants Creative Tips for Food Preparation for Toddlers and Preschoolers Creative Tips for Food Preparation: School-Age Children and Older Helpful Baking/Cooking Substitutions How-To: Produce Washing […]

Inspiring stories: The LeFew family

Our story began shortly after our daughter was born in Yokohama, Japan. We were stationed overseas and my husband was deployed throughout much of Bridget’s infancy. From day one she was fussy. By three weeks old, she would scream for hours, sometimes screaming so hard that she would stop breathing. […]

About Us: Our Founders

“Never doubt that a small group of thoughtful, concerned citizens can change world.Indeed it is the only thing that ever has”. —Margaret Mead The FPIES Foundation is a collaborative effort of several families affected by FPIES whose relentless journey has sparked the desire to help other families find their way. FPIES […]

Inspiring Families This page is dedicated to sharing stories of the journey of our FPIES families. Sharing both our trials and successes gives a voice to all those struggling with this invisible diagnosis, and is a valuable tool for other families as well. This is a unique opportunity for families […]

Healthcare Professionals

Raise Your Voice! Show Support for Better Medical Nutrition Coverage The Medical Nutrition Equity Act (S-1194, HB-2587) is a piece of legislation currently being championed by medical professionals and patient advocacy groups that aims to improve coverage of medical nutrition (such as elemental formula) for individuals affected by a variety […]