School Support: For Parents
Parents become accustomed to advocating for their children in a variety of settings when living with FPIES. The school setting is one of the most importance!
With appropriate tools and resources, parents can best navigate the school systems and equip their children to have a safe and successful education experience!
Webinar from Global Genes: Optimizing Your Loved One’s Learning and Potential at School
Star Tips for Parents
A communication log or journal can be a great way to maintain conversation and share important changes at home and school.
There may be specific strategies that you use to help your child cope with changes that may occur with a food trial
- Discuss these with teachers in case they want to adapt any for classroom implementation
Do your best to be available and accessible for questions, support, and volunteering when possible
Be sure to keep your child’s allergen list up-to-date for both the classroom and for the school records!
Be aware of classroom activities that may expose your child to his/her food triggers (such as art/sensory play activities)
Just as you want the school staff to support you as a parent, let staff know that you support them!
Appreciation goes a long way and can help to further cement a strong relationship between parents and school staff!
Trusted Online Resources:
Appropriate management is key in helping our children to safely and positively experience their school life.
This can be done in part by passing on FPIES specific education materials to teachers and school staff by parents.
Resources that explain how to prevent potential exposures/reactions
Resources that explain FPIES in simple, concise terms
Resources that explain appropriate emergency management in the event of a reaction/exposure
Resources that are portable for on-the-go education, awareness and safety
Resources to help children with coping strategies, self-empowerment and safety teaching tools
FPIES Foundation Articles: School Settings: