Rare Disease Day

Learn About the Day FPIES: Rare But Real Join us each February 28/29th as we mark Rare Disease Day, in solidarity with countless other organizations supporting individuals living with rare conditions!  Started in 2008 by EURORDIS and its Council of National Alliances, this important day is a great time to […]

Rare Diseases Day 2013

Rare Diseases Day International theme for 2013 was “Rare Disorders Without Borders”.  With continued increased awareness, the FPIES community will continue to break down these borders- not only connecting us across miles (and countries) also between patient and practitioner, researcher, schools, childcare, and all aspects of our children’s lives that […]