About Us – The FPIES Foundation

The FPIES Foundation is a collaborative effort of several families affected by FPIES whose relentless journey has sparked the desire to help other families find their way.

The FPIES Foundation is committed to providing a credible and interactive support resource for this rare, oftentimes isolating diagnosis. We strive to make the everyday lives of children with FPIES and their families easier.

Accomplishments and Goals

Our Founders

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The FPIES Foundation is dedicated to overcoming the challenges of FPIES by offering tools for education, support, and advocacy to empower families and the medical community.

Respect- empathy and compassion for families of this oftentimes isolating syndrome.

Integrity – medical responsibility and advocacy for families for this little understood diagnosis.

Innovation – collaboration of FPIES families sharing a common bond in this rare illness.

Education – empowerment through medical information and family share resources and tools.

It is the vision of The FPIES Foundation to provide tools for families & patients managing FPIES every day. vision for caring

Powered by parents, The FPIES Foundation was born from the vision of eight families all affected by FPIES, dedicated to changing the lives of future families and the children they support. Read our stories and help us to carry on a mission of education, support and advocacy.

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Two of the founding mothers now operate The FPIES Foundation today. Together, Joy Meyer and Amanda LeFew facilitate the operations and execute Foundation initiatives, supporting and advocating for families and the professionals who support them.

Read more about Amanda and Joy on Our History: Building a Strong Foundation.

For any additional information you may need, or questions you have about The FPIES Foundation not listed on our website, please do not hesitate to contact us at contact@thefpiesfoundation.org. Thank you for your support of The FPIES Foundation.