Forms and Documents Library
Creative Tips for Food Preparation for Infants
Creative Tips for Food Preparation for Toddlers and Preschoolers
Creative Tips for Food Preparation: School-Age Children and Older
Helpful Baking/Cooking Substitutions
How-To: Produce Washing and Preparation
How-To: Homemade Baby Food (Link)
Label Reading, Decoded! (Link)
Quick and Easy Money-Saving Tips
Starting Your Own Food Journal
Recognizing Shock: Acute Reaction
Dehydration in Acute FPIES Reaction
About FPIES (for affected adults)
FPIES Awareness is Action Poster (1)
FPIES Awareness is ACTION poster (2)
FPIES Awareness is Action Poster (1 B&W)
FPIES Community Awareness Cards, large (english)
FPIES Community Awareness Cards, large (español)
FPIES Community Awareness Cards, small
FPIES Community Awareness: Sample Letter
FPIES: Simple Words, Complex Diagnosis Poster
Letter to Friends/Family for Awareness
Provider-to-Provider FPIES Awareness Letter
Poster and Educational Packets
About FPIES (for affected adults)
Network of Partners and Related Resources
Allergy
- American College of Allergy, Asthma, and Immunology (ACAAI)
- Food Allergy Research and Education (FARE) formally FAI and FAAN
- Allergy and Asthma Foundation of America (AAFA)
- Food Allergy Support Group of Minnesota (FASGMN)
- National Institute of Allergy and Infectious Diseases (NIAID)
- AllergyHome.Org
Nutrition
- Academy of Nutrition and Dietetics (AND, formerly the American Dietetic Association)
- CPNP (Council of Pediatric Nutrition Professionals)
- INDANA (The International Network for Diet and Nutrition in Allergy)

Awareness & Advocacy
- About FPIES Awareness Flyer
- Advocating for your Child in the Healthcare System
- Advocacy in the Rare Diseases Community
- How to Help an FPIES Family Today
- Living with FPIES: Advocating for Your Child in School and Childcare Settings
- RARE Toolkits, Global Genes
- Keys to Effectively Communicate with Healthcare Providers; Webinar from Global Genes
- The Mighty: Story Submission
Pharmaceutical
- Daily Med
- Needy Meds
- “Guidelines for Preanesthetic Assessment of Children With Food Protein–Induced Enterocolitis Syndrome,” A CME activity sponsored by the Icahn School of Medicine at Mount Sinai.
- Rx List
- The Food Allergy Phenomenon and its Anesthesia Complications,” a talk given by Gene Burnett, CRNA, MSN, BSN, BA at the NCANA 2016 Annual Meeting
Caregiver Support
- FPIES: Caring for the Caregiver
- Caregiver Support Webinar from ThriveRx
- The Caregiver Space
- Disability.gov’s Guide for Family Caregivers
- Food Allergy Counselor
- National Military Family Association: EMFP+Special Needs
- Military One Source: Special Needs Parent Toolkit
School Resources
- Advocating for your Child in Childcare Settings
- Advocating For Your Child with a Rare Disease in Their School
- Allergy Free Preschool
- Allergyhome
- For Kids: Meet the School Psychologist
- How to Organize Your Child’s IEP Binder
- Optimizing Your Loved One’s Learning and Potential at School
- School Support for Kids
- School Support for Parents
Support Group Pages
- BabyCenter
- Cows Milk Protein Allergy (CMPA) Support – based in the UK
- Complex Child Online magazine
- Family Voices
- FPIES Australia (independent Facebook group)
- FPIES Canada (independent Facebook group)
- FPIES-SEIPA Québec (independent Facebook group)
- FPIES UK
- FPIES France
- FPIES Italia (independent Facebook group)
- FPIES New Zealand (NZFPIES on Twitter)
- FPIES Sweden (independent Facebook group)
- Global Genes
- How to Help an FPIES Family Today
- NORD
- Sarah’s FPIES Clubhouse (on Facebook)
- Start your own FPIES Support Group
- The FPIES Foundation Blog
Feeding and Formula
- Australian Breastfeeding Association
- Abbott Nutrition (Elecare)
- Children’s Medical Nutrition Alliance (CMNUA)
- Enfamil Nutrition (Nutramigen AA)
- Eating with Food Allergies
- Feeding Matters
- Food Equity Initiative
- How to Start your Cooking Notebook
- KellyMom – evidenced based breastfeeding support
- LaLeche League International (LLLI)
- Nestle Nutrition
- Nutricia (Neocate)
- Nutricia – Global Neocate
- WIC (Women Infant Children)
Gastroenterology (GI)
- Children’s Digestive Health & Nutrition Foundation (CDHNF)
- Registry for Eosinophilic Gastrointestinal Disorders (Regid)
- North American Society for Pediatric Gastroenterology Hepatology and Nutrition (NASPGHAN)
- Association of Pediatric Gastroenterology & Nutrition Nurses (APGNN)
- APGNN Presentation: About FPIES/FPIES Parent Perspective.
Insurance & Formula Coverage
- Abbott Nutrition Insurance Letter
- Pathway Reimbursement (Abbott Nutrition Patient Assistance)
- Children’s Medical Nutrition Alliance
- Elecare Reimbursement Information
- Enfamil Reimbursement Support
- NeedyMeds Prescription Assistance
- Neocate Reimbursement
- Nestle Nutrition Reimbursement Information
- NORD Medical Food Policy Advocacy
- United Healthcare Children’s Foundation, Inc.
Therapies
Occupational Therapy:
- The American Occupational Therapy Association
- The Canadian Association of Occupational Therapists
- The British Association of Occupational Therapists
- Occupational Therapy Australia
- “Avoiding and Addressing Oral Texture Aversion,” an article written and shared by an FPIES parent, Annette Mestern, OTR/L
- “Our Sensory Preferences and Mealtimes,” an interview with co-authors of the newly released book “Sense-ational Mealtimes” Denise Stapleton, PhD, Accredited Practicing Dietitian & Gillian Griffiths, Occupational Therapist.
Psychology:
- Food Allergy Counselor
- TherapistAid – tools, worksheets, handouts
- “How do you handle a toddler having a tantrum about a food issue?“ An APFED Webinar Series
Speech therapy:
Child Life Specialists:
Recreational Therapy:
Music Therapy:
International/Global Resources
- Allergy Free Coach (Australia)
- Allergy UK: FPIES
- FPIES Australia
- FPIES UK
- INDANA (The International Network for Diet and Nutrition in Allergy)
- SEIPA Allergie (France)
- SEIPA Quebec Website
- FPIES-SEIPA Quebec (FB page)
- FPIES/SEIPA France FB support


Tube Feeding Awareness and Support
Living with FPIES
- Getting Started with the Toolbox
- About FPIES
- Doctor Visits
- Cooking and Recipes
- Dental Health
- Food Free Birthday Celebrations!
- Allergy Friendly Halloween
- FPIES Community Awareness Cards
- Living with FPIES: Advocating for Your Child in School and Childcare Settings
- Kids Corner!
- For Kids: Things to do in the Hospital
- To read FPIES stories, visit The Mighty
Other Support
Medical Planners/Trackers

From a Family Review on Great Nonprofits 2014:
“The FPIES Foundation has brought together a wonderful combination of support from others going through the same struggles, as well as expertise from the medical field to provide insight as the knowledge and information grows on how to diagnose and treat children with FPIES. They have put together so many resources to help families in one central place.”
Do you know of a resource that we are missing? If you know of a resource that could be helpful to other families affected by FPIES, please contact us at contact@thefpiesfoundation.org!

Page published: June 20, 2012. Last update: October 7, 2021. Copyright © 2012,The FPIES Foundation