Your Family's Home for FPIES Tools & Resources
FPIES 101: Get the Basics
Get started learning about FPIES by reviewing "About FPIES," the Q&A featuring our esteemed Medical Advisory Board, and our Emergency Care resources, in which you can learn more about FPIES and shock.
Visiting Hospitals & Clinics
A new diagnosis can be overwhelming, and learning how to navigate doctor visits and potential ER or hospital visits is essential. Learn where to locate professionals familiar with FPIES, what to expect at specialist appointments, and explore helpful tools to help you and your child's practitioner formulate emergency plans.
Living with FPIES: Daily Life
Managing FPIES can be a daily challenge! Explore food journal and symptom documentation examples, cooking and nutrition resources, and online and printed resources to help your family navigate life at home, in your local community, and at schools/daycares.
Be the Voice
Be a part of the awareness solution! Find resources to share in your community and learn how to spread FPIES awareness to help our communities learn ways to better support affected individuals. Learn how to advocate for our kids, as well as find resources to help our kids use their own voices to spread awareness and to be their own self-advocates.
The FPIES Foundation is dedicated to overcoming the challenges of FPIES by offering tools for education, support, and advocacy to empower families and the medical community. The house structure of our logo symbolizes strength through a foundation of caring. It represents community and acceptance— inviting families to feel included under one roof. We aspire to help families feel welcomed, to know that they have a place where they can get help, support, and a sense of community, a place to come home.
You are not alone.
Tools for Building Support
Join the 600+ families who participate in the Global FPIES Patient Registry, for free! Once registered, you will complete surveys, contributing data related to your child’s experiences with FPIES.
All data is de-identified, which means that when you submit information into any of the surveys or the registration process of the PIN database, the information will not be able to be attached to you or your child’s identifying characteristics. The information will be stored by means of a code, accessible only to PIN staff.
Data is compiled and organized in charts that can be viewed by yourself, other participants, and researchers via the data portal. Register and check it out today!
New to FPIES, or are you a veteran family seeking a little more support? Needing some guidance in navigating resources?
Sign up for the FPIES Foundation Community Newsletter to get started!
This private support forum is a great way to share experiences and to connect with others for support and solidarity while living with this complex condition. Register for free today!
Share your story with The Mighty, a digital health community created to empower and connect people facing health challenges and disabilities. The FPIES Foundation is proud to partner with this platform!
While on the site, check out stories written by other families affected by FPIES, as well as other parenting experiences written by families affected by other chronic or rare health conditions.
You are not alone!
Page published: June 3, 2012. Last update: January 18, 2018. Copyright © 2012,The FPIES Foundation