We provide the resources and support you need to help you support your child, from nutrition to daily management to emergency care.
Resources for your clinic; tools to learn more about FPIES and current research
Custom resources for kids living with FPIES, and the siblings and friends who support them
Everything you need to prepare for and to navigate trips to the emergency room
Share your voice and inspire research by completing medically-backed surveys about FPIES
Join the private support forum and connect with other families affected by FPIES, worldwide
Has your child experienced severe episodes of vomiting after eating infant cereal and/or first foods, or after drinking formula?
Do you question whether or not a specific food or foods may be contributing to your infant’s worsening symptoms of periodic vomiting, chronic diarrhea, reflux and/or failure to thrive?
These symptoms may indicate a need to speak with your child’s doctor about an FPIES evaluation.
The Medical Nutrition Equity Act (S-1194, HB-2587) is a piece of legislation currently being championed by medical professionals and patient advocacy groups that aims to improve coverage of medical nutrition (such as elemental formula) for individuals affected by a variety of conditions, including FPIES. Learn how you can get involved TODAY!
"It may sound strange, but I can’t describe the relief I felt hearing she would have an 'official' documented diagnosis!"
"If I have two pieces of advice to offer you … ALWAYS LISTEN TO YOUR MOMMY GUT INSTINCTS … and… GET DIAGNOSED! Get a support team to help you! This is a long, hard, and weary battle! Our children are our hero’s!"
"More support is vital-- more medical research is needed into this rare diagnosis so that other infants do not need to experience such complexities from this diagnosis."
A guest post by Laura Benjamin, MD. No one expects to find themselves in the back of an ambulance with their six month old baby during a relaxing Florida vacation, but that’s exactly where I Read more…
From every corner of our world, COVID-19 has impacted us all in one way or another. As I sit here in my living room, in a state particularly hard hit, the evidence of this impact Read more…
Food Allergy Awareness Week (FAAW) is May 10-16 this year. Every year we join with Food Allergy Research and Education (FARE) to honor FAAW. We wanted to share some of the ways you can get involved and help build the growing awareness of different types of food allergies, such as Food Protein Induced Enterocolitis Syndrome (FPIES).
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