Learn how to identify, manage and seek help for acute FPIES reactions
Your one-stop-shop for getting started with your family's FPIES journey
Resources and support for providers caring for patients affected by FPIES
Join the Global FPIES Patient Insights Network, adding your voice to FPIES research
Tools to navigate school for kids, parents, and the teachers who support them
Kid-specific FPIES resources for affected kids, as well as their siblings and friends
Support and connect with other families affected by FPIES in a private forum
Expand your knowledge of FPIES with FREE online and printable resources
Has your child experienced severe episodes of vomiting after eating infant cereal and/or first foods, or after drinking formula?
Do you question whether or not a specific food or foods may be contributing to your infant’s worsening symptoms of periodic vomiting, chronic diarrhea, reflux and/or failure to thrive?
These symptoms may indicate a need to speak with your child’s doctor about an FPIES evaluation.
The Medical Nutrition Equity Act (S. 2013/ H.R. 3783) is a piece of legislation currently being championed by medical professionals and patient advocacy groups that aims to improve coverage of medical nutrition (such as elemental formula) for individuals affected by a variety of conditions, including FPIES. Learn how you can get involved TODAY!
"It may sound strange, but I can’t describe the relief I felt hearing she would have an 'official' documented diagnosis!"
"If I have two pieces of advice to offer you … ALWAYS LISTEN TO YOUR MOMMY GUT INSTINCTS … and… GET DIAGNOSED! Get a support team to help you! This is a long, hard, and weary battle! Our children are our hero’s!"
"More support is vital-- more medical research is needed into this rare diagnosis so that other infants do not need to experience such complexities from this diagnosis."
We, at The FPIES Foundation, are excited to tell you about some new amino-acid formula options! We sat down with April Clark and Kelli Miller, both Registered Dietitians and Clinical Specialists in GI & Allergy for Cambrooke, to talk about Cambrooke’s mission and their new amino acid-based formulas, EquaCare Jr. and Essential Care Jr.
If blueberries are totally your jam, then you’ll like this Roasted Blueberry + Chia Seed Jam recipe. It’s easy to make, flavorful, and healthier than store bought jams and jellies (bonus!).
The resource is called “Book Creator;” some of you (particularly teachers!) may already be familiar with this program. We have established a virtual “library” at The FPIES Foundation’s Book Creator page and are now inviting families to create FPIES-themed books for themselves and for the library!
P.O. Box 304
Stewartville MN 55976
