Emergency Care

Learn how to identify, manage and seek help for acute FPIES reactions

Toolbox

Your one-stop-shop for getting started with your family's FPIES journey

Learning Library

Expand your knowledge of FPIES with FREE online and printable resources

FPIES Registry

Join the Global FPIES Patient Insights Network, adding your voice to FPIES research

Providers

Resources and support for providers caring for patients affected by FPIES

Connect

Support and connect with other families affected by FPIES in a private forum

For Kids

Kid-specific FPIES resources for affected kids, as well as their siblings and friends

School Smart

Tools to navigate school for kids, parents, and the teachers who support them

New Educational Opportunities for
Global FPIES Day ~ October 14, 2021

Support group title page
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Online Learning Library
label reading decoded front page

Raise Your Voice!

Show Support for Better Medical Nutrition Coverage

The Medical Nutrition Equity Act (S. 2013/ H.R. 3783) is a piece of legislation currently being championed by medical professionals and patient advocacy groups that aims to improve coverage of medical nutrition (such as elemental formula) for individuals affected by a variety of conditions, including FPIES. Learn how you can get involved TODAY!

Support Medical Nutrition Equity

Has your child experienced severe episodes of vomiting after eating infant cereal and/or first foods, or after drinking formula?

Do you question whether or not a specific food or foods may be contributing to your infant’s worsening symptoms of periodic vomiting, chronic diarrhea, reflux and/or failure to thrive?

These symptoms may indicate a need to speak with your child’s doctor about an FPIES evaluation.

What is FPIES?

Looking for unique ways to support the FPIES Foundation?

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Gifts in Kind
Volunteer
Donate

Meet our Team

Powered by parents and volunteers, The FPIES Foundation is an all volunteer organization born from the vision of eight families all affected by FPIES, dedicated to changing the lives of future families and the children they support.

Amanda LeFew

Executive Director, Medical Liaison

Amanda lives with her husband and two daughters in Massachusetts, both girls have FPIES. As an MT-BC, she has a passion for outreach and patient education. Amanda is a Foundation Founding Member.

Joy Meyer

Executive Director

Joy lives in Minnesota with her husband and their four boys; their youngest has FPIES. As a DTR, she has a love for Nutrition and a passion for helping others. Joy is a Foundation Founding Member.

Medical Support

Medical Advisory Board

The FPIES Foundation is proud to be supported by our Medical Advisory Board, a team of multidisciplinary leaders in FPIES research, treatment, and support.

Questions about FPIES, Answers from our MAB

FPIES Q&A

Meet Our Inspiring Families

"Friendship is born at that moment when one person says to another, 'What? You too? I thought I was the only one.' " ~ C.S. Lewis
Myra's FPIES Story

Myra's FPIES Story

"It may sound strange, but I can’t describe the relief I felt hearing she would have an 'official' documented diagnosis!"

Our Hero's Journey

Our Hero's Journey

"If I have two pieces of advice to offer you … ALWAYS LISTEN TO YOUR MOMMY GUT INSTINCTS … and… GET DIAGNOSED! Get a support team to help you! This is a long, hard, and weary battle! Our children are our hero’s!"

Our Little Man's Story

Our Little Man's Story

"More support is vital-- more medical research is needed into this rare diagnosis so that other infants do not need to experience such complexities from this diagnosis."

From Our Blog

Providing a network of caring -- the support you need to support those living with FPIES.

Connect With Us!

Are you in need of resources for your child's school or daycare? Would you like to volunteer with the Foundation? Do you need help finding an FPIES-familiar specialist to help support your child? Reach out for resources and support-- we are happy to help you find the tools you need to support your child. Fill out the form or connect with us directly: contact@thefpiesfoundation.org

Connect via Postal Mail

P.O. Box 304

Stewartville MN 55976

Contact Us

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