Learn how to identify, manage and seek help for acute FPIES reactions
Your one-stop-shop for getting started with your family's FPIES journey
Expand your knowledge of FPIES with FREE online and printable resources
Join the Global FPIES Patient Insights Network, adding your voice to FPIES research
Resources and support for providers caring for patients affected by FPIES
Support and connect with other families affected by FPIES in a private forum
Kid-specific FPIES resources for affected kids, as well as their siblings and friends
Tools to navigate school for kids, parents, and the teachers who support them
The Medical Nutrition Equity Act (S. 2013/ H.R. 3783) is a piece of legislation currently being championed by medical professionals and patient advocacy groups that aims to improve coverage of medical nutrition (such as elemental formula) for individuals affected by a variety of conditions, including FPIES. Learn how you can get involved TODAY!
Has your child experienced severe episodes of vomiting after eating infant cereal and/or first foods, or after drinking formula?
Do you question whether or not a specific food or foods may be contributing to your infant’s worsening symptoms of periodic vomiting, chronic diarrhea, reflux and/or failure to thrive?
These symptoms may indicate a need to speak with your child’s doctor about an FPIES evaluation.
"It may sound strange, but I can’t describe the relief I felt hearing she would have an 'official' documented diagnosis!"
"If I have two pieces of advice to offer you … ALWAYS LISTEN TO YOUR MOMMY GUT INSTINCTS … and… GET DIAGNOSED! Get a support team to help you! This is a long, hard, and weary battle! Our children are our hero’s!"
"More support is vital-- more medical research is needed into this rare diagnosis so that other infants do not need to experience such complexities from this diagnosis."
While attending an online event, Aspen Ideas: Health 2022, there was a discussion panel on the topic, “Partnering with Patients Strengthens Science”. One of the panelists, Sneha Dave, in discussing the importance of the condition community, Read more…
A few months ago, we were introduced to Kallie and her mom, Rachele. Kallie introduced us to her breathwork cards and videos. Kallie is 7 years old and she loves swimming, playing with her friends Read more…
Talking about FPIES is a 3-part blog series by Angelika Sharma, FPIES Foundation volunteer. Explaining FPIES to your child You may not have conversations with your baby or small child yet, but you are already Read more…
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