Learn how to identify, manage and seek help for acute FPIES reactions
Your one-stop-shop for getting started with your family's FPIES journey
Expand your knowledge of FPIES with FREE online and printable resources
Join the Global FPIES Patient Insights Network, adding your voice to FPIES research
Resources and support for providers caring for patients affected by FPIES
Support and connect with other families affected by FPIES in a private forum
Kid-specific FPIES resources for affected kids, as well as their siblings and friends
Tools to navigate school for kids, parents, and the teachers who support them
The Medical Nutrition Equity Act (S. 2013/ H.R. 3783) is a piece of legislation currently being championed by medical professionals and patient advocacy groups that aims to improve coverage of medical nutrition (such as elemental formula) for individuals affected by a variety of conditions, including FPIES. Learn how you can get involved TODAY!
Has your child experienced severe episodes of vomiting after eating infant cereal and/or first foods, or after drinking formula?
Do you question whether or not a specific food or foods may be contributing to your infant’s worsening symptoms of periodic vomiting, chronic diarrhea, reflux and/or failure to thrive?
These symptoms may indicate a need to speak with your child’s doctor about an FPIES evaluation.
"It may sound strange, but I can’t describe the relief I felt hearing she would have an 'official' documented diagnosis!"
"If I have two pieces of advice to offer you … ALWAYS LISTEN TO YOUR MOMMY GUT INSTINCTS … and… GET DIAGNOSED! Get a support team to help you! This is a long, hard, and weary battle! Our children are our hero’s!"
"More support is vital-- more medical research is needed into this rare diagnosis so that other infants do not need to experience such complexities from this diagnosis."
In 2019, I was fortunate enough to represent The FPIES Foundation at the ACAAI conference in Houston, Texas! It was an amazing opportunity to educate medical professionals who were unfamiliar with FPIES, as well as Read more…
A recipe shared with us, courtesy of Jerran Boyer, Owner and Executive Chef at Health Nut Chef What do you do when you crave apple pie, but you want something healthy and/or have food allergies? Read more…
I sat nervously at the conference table, introducing myself to a room of new faces, new faces that I sincerely hoped would help to make accommodations for my daughter when she entered kindergarten in the Read more…
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