Raise Your Voice!
Show Support for Better Medical Nutrition Coverage
The Medical Nutrition Equity Act (S-1194, HB-2587) is a piece of legislation currently being championed by medical professionals and patient advocacy groups that aims to improve coverage of medical nutrition (such as elemental formula) for individuals affected by a variety of conditions, including FPIES. Learn how you can get involved TODAY!
FPIES and Nutrition
Individualized nutritional management is at the heart of every treatment plan for children diagnosed with FPIES. Just as any food allergy limits the affected child’s diet, an FPIES diagnosis can dramatically impact his/her ability to take in appropriate nutrients due to food restrictions.
As Registered Dietitian Nutritionists, children diagnosed with FPIES may be referred to you. You may see infants and their mothers for help with nutrition related to breast feeding, with or without elimination diets.Families may turn to you for help planning foods trials, or for help in learning new ways how to use the same tired, safe-ingredient lists.
You may also be called on to educate families and professionals about label reading, balancing limited diets, and many other ways to best manage nutrition in order to help little ones thrive.
The resources on this page have been selected to help fill your professional FPIES toolbox. If there are additional resources you would like to share with us, please connect with us today! If you are in need of additional resources or support, please reach out to us– we would love to help!
Did you miss our most recent Nutrition Webinar?
You can still watch the recording and download the slides and worksheets, all free of charge!
- CDC Growth Percentiles Calculator
- Gestational Age Calculator
- Nutrition Data Nutrition Facts
- Nutrition Contents of Food (USDA)
- Interactive DRI Calculator
- Pediatric Calorie Counter
- Super Tracker from ChooseMyPlate.gov
- Tutorial for Measuring WHO arm circumference
- WHO arm circumference percentiles
- Z-score Calculator
- Resources from Abbott Nutrition: Alimentum
- Alimentum
- Hydrolyzed dairy proteins with free amino acids, may be an option for children with FPIES.
- Alimentum Ready to Feed (RTF)
- Abbott states that this formula is corn-free
- Letter to request insurance coverage, from Abbott
- Alimentum
- Resources from Abbott Nutrition: Elecare
- Elecare
- Amino acid based formula, may be an option for children with FPIES.
- Abbott Patient Assistance Foundation
- Reimbursement Information
- Template: Letter of Medical Necessity
- Recipes
- Elecare
- Resources from Children’s Medical Nutrition Alliance (CMNuA)
- General Coverage facts– a resource for parents
- Coverage facts for FPIES – resources from CMNuA for families living with FPIES
- Coverage Inequality – print your letter to share
- Fund for Food and Families – application for additional financial help from CMNuA.
- Resources from Nutricia: Neocate
- Neocate
- Amino acid based formula, may be an option for children with FPIES
- Click on “Local Sites” for Country-specific resources
- Dilution chart: Neocate Infant (US)
- Dilution chart: Neocate Infant (Canada) and other products
- Dilution chart: Neocate Jr.
- Guides for Daily Life
- Recipes
- Reimbursement Information
- Neocate
- Mead-Johnson Nutrition: Nutramigen & Puramino
- Search Products by Need
- Dilution information
- Nutramigen Information
- Hydrolyzed dairy proteins with free amino acids, may be an option for children with FPIES.
- Puramino information
- Amino acid based formula, may be an option for children with FPIES
- Insurance Reimbursement Request
- FeedingtubeAwareness.org
- Homemade Blended Formula Handbook
- Tube Feeding Emergency Kit, by the Oley Foundation
- Overview of Pediatric G-Tubes
- Providing G-tube Feedings
- Stickers that are kid-friendly to help keep NG tubes in place
- Tubie Friends: stuffed animals to help your little ones understand about feeding tubes
- Various Resources and How-To’s from Halyard, makes of MIC-KEY
- AMT: Applied Medical Technology produces gastro enteric feeding tubes for adults and children.
- Preparing for an in-office food challenge
- Action Plan for FPIES
- Emergency Action Plan for FPIES
- FARE food allergy action plan
- FPIES Cooking and Recipes Home
- Allergy-Friendly Cookbooks and Websites
- Creative Tips for Food Preparation for Infants
- Creative Tips for Food Preparation for Toddlers
- Creative Tips for Food Preparation for Older Children
- Helpful Baking/ Cooking Suggestions
- Homemade Baby Food Tutorial
- Label Reading Tutorial
- Produce Washing and Preparation
- The FPIES Foundation Recipe Box
- “Someone’s in the Kitchen with FPIES:” A New Blog Series on The FPIES Foundation blog!
- American Speech-Language-Hearing Association
- “Avoiding and Addressing Oral Texture Aversion” by Annette Mestern, OTR/ L
- FeedingMatters Video Resources
- “How Do You Handle a Toddler Having a Tantrum About a Food Issue?” An APFED Webinar Video
- “Our Sensory Preferences and Mealtimes”— an interview with Denise Stapleton, PhD and Gillian Griffiths, OTR/ L
- Feeding Matters Resource Directory – comprehensive information and helpful resources to deal with feeding struggles.
- NASPGHAN’s Council for Pediatric Nutrition Professionals
- APGNN Conference recorded presentation: About FPIES/FPIES Parent Perspective
- CPNP Nutrition Pearl: FPIES.
- FEMA’s Guide to Emergency Preparedness for Special Needs Populations
- Food Allergy Living Blog from Neocate
- Overview of WIC services
- Children’s Medical Nutrition Alliance – resources for medical food access.
- Food Equity Initiative
- Indana Allergy Network (The International Network for Diet and Nutrition in Allergy)
- Herbal Nutrition from Natural Medicines Comprehensive Database.
- NIH Vitamin and Mineral Supplement Fact Sheets
- FPIES Food Survey – informal food survey designed by a parent of a child with FPIES provides idea’s and encouragement on foods to trial in conjunction with the medical team.
Need Additional Resources for Your Clinic?
Visit the Medical Professionals page for additional resources about FPIES to support the families your clinic serves. Additional information for professionals to expand their knowledge of FPIES can also be found there. Check it out today!
Page published: May 26, 2015. Last update: Jan. 22, 2018. Copyright © 2015,The FPIES Foundation