Raise Your Voice!
Show Support for Better Medical Nutrition Coverage
The Medical Nutrition Equity Act is a piece of legislation currently being championed by medical professionals and patient advocacy groups that aims to improve coverage of medical nutrition (such as elemental formula) for individuals affected by a variety of conditions, including FPIES. Learn how you can get involved TODAY!
FPIES and Nutrition
Individualized nutritional management is at the heart of every treatment plan for children diagnosed with FPIES. Just as any food allergy limits the affected child’s diet, an FPIES diagnosis can dramatically impact his/her ability to take in appropriate nutrients due to food restrictions.
As Registered Dietitian Nutritionists, children diagnosed with FPIES may be referred to you. You may see infants and their mothers for help with nutrition related to breast feeding, with or without elimination diets.Families may turn to you for help planning foods trials, or for help in learning new ways how to use the same tired, safe-ingredient lists.
You may also be called on to educate families and professionals about label reading, balancing limited diets, and many other ways to best manage nutrition in order to help little ones thrive.
The resources on this page have been selected to help fill your professional FPIES toolbox. If there are additional resources you would like to share with us, please connect with us today! If you are in need of additional resources or support, please reach out to us– we would love to help!
Did you miss our Nutrition Webinar?
Although the recording for this webinar is no longer available, you can still download the slides and worksheets, all free of charge!
Also be sure to check our other presentation recordings in the “Related Resources” section below!
- Resources from Abbott Nutrition:
- Alimentum– Hydrolyzed dairy proteins with free amino acids, may be an option for children with FPIES.
- Alimentum Ready to Feed (RTF) Abbott states that this formula is corn-free.
- Letter to request insurance coverage (PDF), from Abbott.
- Resources from Abbott Nutrition:
- Elecare – Amino acid based formula, may be an option for children with FPIES.
- Abbott Patient Assistance Foundation
- Reimbursement Information.
- Template: Letter of Medical Necessity.
- Elecare Recipes
- Resources from Patients and Providers for Medical Nutrition Equity (PPMNEA)
- Covered Conditions– a resource for parents
- Resources and Fact Sheets
- States Coverage
- Take Action Share Your Story!
- Resources from Nutricia:
- Neocate – Amino acid-based formula, may be an option for children with FPIES.
- Resources and Guides
- Recipes
- Reimbursement Resources
- Resources from Nestle Nutrition
- Resources from Mead-Johnson Nutrition:
- Nutramigen Information- Hydrolyzed dairy proteins with free amino acids, may be an option for children with FPIES.
- Puramino information- Amino acid based formula, may be an option for children with FPIES
- Insurance & Formula Assistance
- Resources from Ajinomoto Health & Nutrition North America, Inc.
- Essential Care/Essential Care Jr. – these formulas are made without corn syrup solids.
- Equa Care/Equa Care Jr
- Homemade Blended Formula Handbook
- Tube Feeding Emergency Kit, by the Oley Foundation
- Overview of Pediatric G-Tubes for patients
- Providing G-tube Feedings – info for families.
- Stickers that are kid-friendly to help keep NG tubes in place
- Tubie Friends: stuffed animals to help your little ones understand about feeding tubes
- Resources for MIC-KEY Feeding Tubes.
- AMT: Applied Medical Technology produces gastro enteric feeding tubes for adults and children.
- FPIES Cooking and Recipes Home
- Allergy-Friendly Cookbooks and Websites
- Creative Tips for Food Preparation for Infants
- Creative Tips for Food Preparation for Toddlers
- Creative Tips for Food Preparation for Older Children
- Helpful Baking/ Cooking Suggestions
- Homemade Baby Food Tutorial
- Label Reading Tutorial
- Produce Washing and Preparation
- The FPIES Foundation Recipe Box
- “Someone’s in the Kitchen with FPIES:” A Blog Series on The FPIES Foundation blog!
- American Speech-Language-Hearing Association
- “Avoiding and Addressing Oral Texture Aversion” by Annette Mestern, OTR/ L
- FeedingMatters Video Resources
- “How Do You Handle a Toddler Having a Tantrum About a Food Issue?” An APFED Webinar Video
- “Our Sensory Preferences and Mealtimes“– an interview with Denise Stapleton, PhD and Gillian Griffiths, OTR/ L
- Feeding Matters Resource – comprehensive information and helpful resources to deal with feeding struggles.
- NASPGHAN’s Council for Pediatric Nutrition Professionals (CPNP)
- APGNN Conference recorded presentation: About FPIES/FPIES Parent Perspective
- CPNP Nutrition Pearl: FPIES.
- About FPIES & A Parent’s Perspective Minnesota Academy of Nutrition & Dietetics (MAND) presentation by Joy Meyer, DTR Co-Founder/Co-Director, The FPIES Foundation
- FEMA’s Guide to Emergency Preparedness for Special Needs Populations
- Food Allergy Living Blog from Neocate
- WIC services
- Food Equity Initiative
- Indana Allergy Network (The International Network for Diet and Nutrition in Allergy)
- NIH Vitamin and Mineral Supplement Fact Sheets
- FPIES Food Survey – informal food survey designed by a parent of a child with FPIES provides ideas and encouragement on foods to trial in conjunction with the medical team.
Need Additional Resources for Your Clinic?
Visit the Medical Professionals page for additional resources about FPIES to support the families your clinic serves. Additional information for professionals to expand their knowledge of FPIES can also be found there. Check it out today!
Page published: May 26, 2015. Last update: May 10, 2023. Copyright © 2015,The FPIES Foundation