Research is an essential investment, and we dedicate a minimum of 25% of our funds annually to these projects. It is our mission to fund research that improves not only understanding of this diagnosis, but that also improves daily management of this oftentimes confounding condition.
Our partnerships range from funding existing research projects to direct collaboration with researchers on specific studies. Together, we can further advance our understanding of this condition and bring about resources to aid in diagnostic and management strategies.
The FPIES Patient Registry
Our free Patient Insight Network, developed with Invitae, offers participants the chance to be a voice in research. Deidentified data is able to be seen not only by participants, but also interested researchers and practitioners who work diligently to expand the field of FPIES knowledge, best practices, and research.