Navigating your child’s Food Protein-Induced Enterocolitis Syndrome (FPIES) can be tricky, but know that many parents face this challenge, so you’re not alone. A 2021 review shows that FPIES may not be as rare as it once was. This diagnosis may feel limiting for parents who want their children to explore new foods. However, proper research will help you make informed decisions, so your child still enjoys a tasty and balanced diet.
Registry and Research Dr. Marta Vazquez-Ortiz discusses the innovative work and goals of the BIO-FPIES Study Network! The BIO-FPIES Study Network, a partnership between Imperial College London, GENVIP in Spain, and ten tertiary allergy centers in Spain and Italy, is aiming at improving diagnosis and management of Acute FPIES. Learning […]
The FPIES Foundation Partners with My PaTH Story Booth Post written by Amanda LeFew, Co-Director at The FPIES Foundation Select content in this article was used with permission from the My PaTH Story Booth’s website You have often heard us say, “Your greatest contribution to the Foundation is your Voice!” […]
FPIES and Research FPIES can be a complex and often confounding condition. Practitioners and families alike stress frustration over a deficit of understanding for this condition. This is where research can help! When we work together to support research efforts, we move closer to achieving our goals– improving understanding of […]
Have you ever looked back upon your life and been in awe as to how everything seems to have worked out for some higher purpose? I am still amazed at how many of my life choices were, unknowingly, preparing me to be the mom of an FPIES baby. A PhD […]
The FPIES Foundation Joins with Food Allergy Research & Education In Support of the Teal Pumpkin Project® This Halloween
The FPIES Foundation is pleased to announce its pledge of support for the Teal Pumpkin Project®, a worldwide movement to create a safer, happier Halloween for all children. The Teal Pumpkin Project, which launched as an international campaign in 2014 by Food Allergy Research & Education (FARE), provides an alternative for […]
Challenges and Unmet Needs in FPIES from the Parents and Adult Patients’ Perspective – an International Survey
Researchers were very interested in learning more and have published a paper on what they have learned, from YOU! The results of the survey show researchers that the key priorities for the community are: better awareness among health professionals, having diagnostic tests to avoid misdiagnosis, as well as predictive tests to guide safer food trials. Future research and initiatives will be guided by these priorities!
The FPIES Foundation is collaborating with clinicians, researchers, and families affected by FPIES. We are looking for information from families to understand how FPIES can impact young people’s eating habits and behaviors. This survey is for all parents of children under the age of 18 with acute FPIES.
While attending an online event, Aspen Ideas: Health 2022, there was a discussion panel on the topic, “Partnering with Patients Strengthens Science”. One of the panelists, Sneha Dave, in discussing the importance of the condition community, said these words: “One thing we can’t forget – while we are waiting for a […]
A few months ago, we were introduced to Kallie and her mom, Rachele. Kallie introduced us to her breathwork cards and videos. Kallie is 7 years old and she loves swimming, playing with her friends and sister, horseback riding, creating art, and she loves doing breathwork with everyone in the […]