Forms and Documents Library
Creative Tips for Food Preparation for Infants
Creative Tips for Food Preparation for Toddlers and Preschoolers
Creative Tips for Food Preparation: School-Age Children and Older
Helpful Baking/Cooking Substitutions
How-To: Produce Washing and Preparation
How-To: Homemade Baby Food (Link)
Label Reading, Decoded! (Link)
Quick and Easy Money-Saving Tips
Starting Your Own Food Journal
Advocating for your Child in the Healthcare System
Recognizing Shock: Acute Reaction
Dehydration in Acute FPIES Reaction
About FPIES (for affected adults)
FPIES Awareness is Action Poster (1)
FPIES Awareness is ACTION poster (2)
FPIES Awareness is Action Poster (1 B&W)
FPIES Community Awareness Cards, large (english)
FPIES Community Awareness Cards, large (español)
FPIES Community Awareness Cards, small
FPIES Community Awareness: Sample Letter
FPIES: Simple Words, Complex Diagnosis Poster
Hello, my name is….FPIES Self-Advocacy Cards
Letter to Friends/Family for Awareness
Provider-to-Provider FPIES Awareness Letter
Poster and Educational Packets
About FPIES (for affected adults)
Network of Partners and Related Resources
Nutrition
Awareness & Advocacy
- About FPIES Awareness Flyer
- Advocating for your Child in the Healthcare System
- How to Help an FPIES Family Today
- Advocating for Your Child in School and Childcare Settings
- The Mighty: Story Submission
- K12 Allergy- resources for people with food allergies.
- Patient Worthy– Rare Patient News.
Pharmaceutical
- Daily Med
- Needy Meds
- Rx List
- The Food Allergy Phenomenon and its Anesthesia Complications,” a talk given by Gene Burnett, CRNA, MSN, BSN, BA at the NCANA 2016 Annual Meeting
Caregiver Support
- FPIES: Caring for the Caregiver
- The Caregiver Space
- Food Allergy Counselor
- National Military Family Association: EMFP+Special Needs
Child Life
- FPIES Foundation for Kids: Kids Corner Home
- National Association of Children’s Hospitals
- The Child Life Council
- Coping Skills for Kids
- Talking About FPIES- Part Three: Explaining FPIES to Your Child
Educational Resources
Support Group Pages
- BabyCenter
- Complex Child Online magazine
- Family Voices
- FPIES Australia (independent Facebook group)
- FPIES Canada (independent Facebook group)
- FPIES-SEIPA Québec (independent Facebook group)
- FPIES UK
- FPIES Italia (independent Facebook group)
- FPIES Sweden (independent Facebook group)
- Global Genes
- How to Help an FPIES Family Today
- NORD
- Sarah’s FPIES Clubhouse (on Facebook)
- Start your own FPIES Support Group
- The FPIES Foundation Blog
Feeding and Formula
- Australian Breastfeeding Association
- Abbott Nutrition (Elecare)
- Enfamil Nutrition (Nutramigen AA)
- Eating with Food Allergies
- Feeding Matters
- Food Equity Initiative
- Free to Feed – breastfeeding support
- How to Start your Cooking Notebook
- KellyMom – evidenced based breastfeeding support
- LaLeche League International (LLLI)
- Nestle Nutrition
- Nutricia (Neocate)
- USDA
- WIC (Women Infant Children)
Gastroenterology (GI)
- GI Kids
- North American Society for Pediatric Gastroenterology Hepatology and Nutrition (NASPGHAN)
- Association of Pediatric Gastroenterology & Nutrition Nurses (APGNN)
- APGNN Presentation: About FPIES/FPIES Parent Perspective.
Insurance & Formula Coverage
Therapies
Occupational Therapy:
- The American Occupational Therapy Association
- The Canadian Association of Occupational Therapists
- The British Association of Occupational Therapists
- Occupational Therapy Australia
- “Avoiding and Addressing Oral Texture Aversion,” an article written and shared by an FPIES parent, Annette Mestern, OTR/L
- “Our Sensory Preferences and Mealtimes,” an interview with co-authors of the newly released book “Sense-ational Mealtimes” Denise Stapleton, PhD, Accredited Practicing Dietitian & Gillian Griffiths, Occupational Therapist.
Psychology:
- Food Allergy Counselor
- TherapistAid – tools, worksheets, handouts
- “How do you handle a toddler having a tantrum about a food issue?“ An APFED Webinar Series
Speech therapy:
Child Life Specialists:
Recreational Therapy:
Music Therapy:
International/Global Resources
- Allergy Free Coach (Australia)
- Allergy UK: FPIES
- FPIES Australia
- FPIES UK
- INDANA (The International Network for Diet and Nutrition in Allergy)
- SEIPA Allergie (France)
- SEIPA Quebec Website
- FPIES-SEIPA Quebec (FB page)
- FPIES/SEIPA France FB support
Tube Feeding Awareness and Support
From a Family Review on Great Nonprofits 2014:
“The FPIES Foundation has brought together a wonderful combination of support from others going through the same struggles, as well as expertise from the medical field to provide insight as the knowledge and information grows on how to diagnose and treat children with FPIES. They have put together so many resources to help families in one central place.”
Do you know of a resource that we are missing? If you know of a resource that could be helpful to other families affected by FPIES, please contact us at contact@thefpiesfoundation.org!
Page published: June 20, 2012. Last update: September 19, 2023. Copyright © 2012, The FPIES Foundation