Have you, or has someone you love, been diagnosed with FPIES?
Maybe you have heard this myth: “But wait! FPIES is a condition that only affects infants and children!”
In fact, FPIES CAN present in adults, of any age, though the current research suggests it occurs in adults less frequently than in children. There is certainly crossover in the usefulness of FPIES resources for all ages; that said, this diagnosis demands age-appropriate resources for adults as well. Consider this page as a landing site for beginning your journey to a more thorough understanding of FPIES and how it may impact your day to day life.
Be sure to click on the buttons for, “Daily Life with FPIES,” and “Medical and Emergency Care,” to access adult-specific resources.
FPIES and Adults:
Scholarly Journal Articles
Though you will find great information in our general FPIES medical journal listing, here are some articles specific to FPIES and adults that you and your practitioner may find helpful.
- Medical algorithm: Diagnosis and management of adult food protein-induced enterocolitis syndrome. Gonzalez-Delgado P, Anvari S, Entrala A, Infante S. Medical algorithm: Diagnosis and management of adult food protein-induced enterocolitis syndrome. Allergy. 2024 Oct;79(10):2881-2884. doi: 10.1111/all.16142. Epub 2024 Apr 30. PMID: 38686652.
- Adult Food Protein Induced Enterocolitis Syndrome. Anvari Sara, Ruffner Melanie A.Adult Food Protein-Induced Enterocolitis Syndrome. Frontiers in Allergy. Volume 3. 2022. https://www.frontiersin.org/articles/10.3389/falgy.2022. DOI: 10.3389/falgy.2022.889879. ISSN:2673-6101
- Relevant features of adult-onset food protein–induced enterocolitis syndrome. Jimena Crespo, MD, Filip Skrabski, MD, Maria Esperanza Perez-Pallise, MD, Francisco Javier De Castro-Martinez, MD, Jose Manuel Zubeldia, MD, PhD, and Sonsoles Infante, MD, PhD. The Journal of Allergy and Clinical Immunology: In Practice. Volume 9, Issue 4, April 2021, Pages 1759-1760.e1
- Food Protein-Induced Enterocolitis Syndrome, Not Just in Children. Yue Jennifer Du, BMSc; Purificacion Gonzalez-Delgado, MD ; Peter Vadas, MD, FRCPC, PhD. Ann. Allergy Asthma Immunol 127 (2021) 291-292.
- Adults with possible food protein-induced enterocolitis syndrome with crustacean ingestion. Daniel H. Li, Andrew Wong-Pack, Andrea Leilani Macikunas & Harold Kim Allergy, Asthma & Clinical Immunology volume 16, Article number: 99 (2020).
- Food protein–induced enterocolitis-like syndrome in a population of adolescents and adults caused by seafood. Gonzalez-Delgado, P.; Caparrós, E.; Moreno, M.V.; Cueva, B.; Fernández, J. J. Allergy Clin. Immunol. Pr. 2019, 7, 670–672.
- Egg provoked food protein‐induced enterocolitis‐like syndrome in an adult. C Zubrinich, M Hew, R O’Hehir. Clinical Case Rep. 2016 Sep; 4(9): 899–901.
- Food protein-induced enterocolitis syndrome can occur in adults. Fernandes, Bryan N; Boyle, Robert J; Gore, Claudia; Simpson, Angela; Custovic, Adnan.Journal of Allergy and Clinical Immunology; St. Louis Vol. 130, Iss. 5, (Nov 2012): 1199-1200.
Connecting and Contributing
Living with FPIES can feel isolating at times, but know that you are not alone! By volunteering with The FPIES Foundation, you can connect with members of the FPIES community while contributing your talents! As an adult diagnosed with this condition, you have unique insights into living with FPIES that can truly be invaluable to the creation of resources and special projects, as well as raising awareness. Join us in the Foundation’s work TODAY!!
Do you have professional skills that could benefit FPIES families through educational resources, like webinars? Connect with us today with your proposal to collaborate on potential projects!
Page published: September 7, 2021. Last update: October 7, 2021. Copyright © 2021,The FPIES Foundation