Life with FPIES: Navigating the Day-to-Day
You have your diagnosis, maybe you’ve even already found a great team of specialists to help guide you. What happens next? How do you navigate work, meal planning, and that not-always-so-simple trip to the grocery store?
Work and School
FPIES can make an impact on your work and college life as much as it can impact your home life. It is important to be prepared for emergencies and to be sure to inform those who need to know.
Family and Relationships
FPIES can make an impact on your work and college life as much as it can impact your home life. It is important to be prepared for emergencies and to be sure to inform those who need to know. Who do you talk to about your diagnosis and what do you say?
Finding Support
Even when you have a solid understanding of the signs and symptoms of FPIES, it can be helpful to connect with someone else who just “gets it.” Reaching out to others affected by FPIES can be a great way to relieve stress, share resources, and learn new tips and tricks for navigating life with this often confounding condition. Support groups can be virtual or in-person! Click the button to learn how to create virtual or in-person support groups today!
Nutrition
Whether you are avoiding one or many trigger foods, FPIES requires thoughtful nutrition management.
Meeting regularly with a dietitian can help you to be sure all of your dietary needs are met. Find out what is involved in locating a knowledgeable dietitian, and discover steps to take in learning how to navigate label reading, food journaling and more!
Self-Care
Self-care can be difficult when you are managing your career, family, and more. When FPIES is thrown into the mix, it complicates things further. Finding healthy ways to cope with stress can give you the energy you need to learn how to manage day to day life with this condition.
Sharing Your Story
For those individuals just receiving their FPIES diagnosis, the prospects of daily life with FPIES can feel overwhelming at times, and even anxiety-provoking.
Reading the experiences of others can help to provide a sense of solidarity and comfort, as well as insight into day-to-day management of FPIES and self-care strategies. Your voice is one of the greatest contributions you can give to the FPIES community!
Page published: September 27, 2021. Last Updated: October 20, 2021. Copyright © 2021,The FPIES Foundation