So, you are considering starting your own support group! What a great way to not only provide your family with an additional support network, but also to reach out to others who may be facing similar struggles.
Where to begin? There are a few different ways of approaching support groups– not all groups are created equal! Let’s first review a few different models of support groups to consider, and then discuss what aspects may cause each model to be a good fit for your members. Be sure to check out tips for support group success and additional resources below!
Finding the Perfect Fit:
Each group of individuals has unique needs and goals that accompany membership in a support group. Assessing the goals/needs of your group members (or the goals/needs you wish to promote as you build your group), can help to determine what structure is the best fit.
It is important to recognize that the “best fit” may change over time as the group develops, and reassessing the group’s needs and goals periodically can help you to ensure that your group is providing effective support to the individuals it serves. These models are by no means the only group models. In addition, a combination of two or more of the models may help you to generate a custom design best suited to your group’s unique goals/needs.
Tips for Running the Group:
Once you have determined your group model and its intended goals, there are some other aspects to consider:
You can contact hospitals, libraries, churches or community centers (for instance) to inquire about a private space available to your group for regularly scheduled meetings. Though a coffee shop may be fine for casual group conversations, many support group members often find privacy most appealing, so a quiet, private environment may draw more families into joining your group.
This really depends on the nature of your group and on the comfort level of group members. Some groups may have parent support sessions and then separate “play group” style parent and child support sessions. If children are involved, because of the nature of FPIES, food restrictions may need to be considered, in addition to careful selection of the group’s meeting place.
Monthly, weekly, biweekly. . . morning, evening, weekends . . . talk to group members to establish what frequency best meets the group’s needs. If you have a facilitator, additional considerations will need to be made.
Support groups can offer a wonderful outlet for group members! That said, discussions and subject matter can be very emotionally charged, so it is important to set group rules that ensure the group environment is a safe, non-threatening therapeutic environment where group members feel comfortable. Key points to consider are respect for others, confidentiality, taking turns (yes, even adults do forget!), and even the group’s routine. Soliciting input from all members can be a great way to arrive at a reasonable list of ground rules. Remember to keep it simple, but keep it supportive!
Guest speakers can be a great way to expose the group to new information or to educate on a specific topic. Scheduling of speakers needs to be done in an organized fashion and may need to require significant advance planning. Assigning a specific person or persons to this task can be helpful. Group members may make suggestions regarding which speakers to invite.
In addition to a support network, a social network can arise from support groups. As your group is growing and developing, you and your group members may wish to consider integrating social events, events outside of the support group schedule when everyone can simply get together for a little well-deserved relaxing fun.
Be sure to organize some system that allows group members to get in touch with one another or at least with the facilitator/group scheduler. In case of emergencies, inclement weather and so on, having a system for contacting members in regards to group changes/cancellations is essential.
To keep your group running smoothly, you will want to ensure consistency. This can be established through keeping regular meeting times and meeting duration, maintaining a basic structure for each group meeting, and keeping simple documentation. (such as a sign in sheet). Examples of organizational tools can be found in the resources section below. For facilitator-run groups, the facilitator will take a lead in establishing the structure and maintaining it.
Consider assessing the group’s needs on a periodic basis, so as to ensure that the group is meeting members’ needs as accurately as possible. For instance, a basic five to ten question assessment with measurable responses submitted quarterly can help a facilitator/group leader to determine future group direction.
Creating support groups can be a very rewarding experience. Hopefully, these suggestions above will get you started! Please keep in mind that these are not the only ways to run a support group and additional information can be found in a variety of resources. Though The FPIES Foundation is in favor of families supporting families and community involvement, we do not at this time officially sponsor any specific support groups. We are happy to provide FPIES-related educational materials to support groups upon request.
For more information on creating and running your own support group, please contact The FPIES Foundation and we will be happy to provide you with addition tips, suggestions for group topics, and any additional related trouble-shooting that may be involved. By supporting others, we often can find the best support for our own families. Thank you for reaching out and supporting one another!
Page published: Jan.18,2013. Last update: June 10, 2018. Copyright © 2013, The FPIES Foundation