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The Medical Nutrition Equity Act is a piece of legislation currently being championed by medical professionals and patient advocacy groups that aims to improve coverage of medical nutrition (such as elemental formula) for individuals affected by a variety of conditions, including FPIES. Learn how you can get involved TODAY!
FPIES and Nutrition
When coping with a diagnosis of FPIES, one of the primary considerations for families is often nutrition. Families may wonder what resources are available to them– either to help them navigate nutrition questions independently or with the help of a medical professional, such as a Registered Dietitian Nutritionist (RDN). We collected a variety of tools and support for navigating these questions that can be found here in the form of parent guides, fact sheets and multimedia online learning resources.
Who Can Help Me Understand the Nutritional Needs of Myself or My Child?
Finding a nutrition professional to help you navigate the nutritional challenges that can occur with an FPIES diagnosis can help to give your family more peace of mind. Learning about the various credentials involved in a nutrition professional’s training is important to help you figure out which professional may be the best fit for your treatment team.
A Registered Dietitian Nutritionist (RDN), also known as a Registered Dietitian (RD), is a nutrition expert with credentials achieved through higher education. These include: a Bachelor’s of Science (BS) degree (minimum), Accredited Dietetic Internship program, and a national accreditation exam. Registration credentials must be maintained through Continuing Education Credits (CEU).In addition, some RDN/RDs hold additional certifications in specialized areas of practice, such as Pediatrics. This credential is provided by the Commission on Dietetic Registration and is nationally accredited and recognized. Note: An RD may also carry an additional credential of a Licensed Nutritionist (LN/LDN) because some states require licensure of Dietitian/Nutritionists. To learn more about licensing requirements for nutrition professionals visit: http://www.nutritioned.org/
In addition, to learning about the various nutrition professionals that you may be available in your area, you may also be interested in learning about resources and tools for managing FPIES in the kitchen.
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Explore Online Nutrition Resources
Please note– these nutrition and caloric calculators are designed to assess children without medical conditions. Children who are Failure to Thrive (FTT), on the high end of the growth chart (over the 85th percentile for height/ BMI), have had significant gain or loss of percentiles over time, or have other conditions that affect calorie needs (like Cystic Fibrosis) may have significantly different requirements. Protein needs are just as important for growth as calories.
Working closely with your child’s team (including his/her Doctor and Dietitian) to provide a personalized nutrition plan that ensures proper growth is an important part of managing your child’s FPIES. Links provided here are intended for use as an additional resource to prepare you and your child for appointments and to provide additional support for the time between visits.
- Calculator for Daily Nutrient Recommendations An interactive tool from the USDA, this calculates daily nutrient recommendations for dietary planning, based on the Dietary Reference Intakes (DRI).
- Nutrition Data, a resource from the USDA. On Nutrition Data, you can locate detailed nutrition information and analysis tools about the foods you eat.
- Pediatric Calorie Calculator for estimating how many calories your child needs each day. This is best used under the guidance of a medical professional familiar with your child’s unique needs.
- Special apps can help to calculate calories and track foods in a journal style
- When your child has a growing list of safe foods and it’s time to “make friends” with food, www.choosemyplate.gov has an excellent assortment of resources
Page published: May 26, 2015. Last update: Aug. 8, 2018. Copyright © 2015, The FPIES Foundation