One of the things that I find I struggle with as an FPIES mom is making food fun for my kids. My youngest can eat very few packaged foods, and so anything fun he gets has to come from me. I try to find things both he and my oldest […]
Contains: FIVE ingredients: millet, water, safflower oil, pure maple syrup, and mini-chocolate chips. Does NOT contain: egg, baking soda, baking powder. Inspired by a recipe from a fellow FPIES mom (and her blog), and her recipe for Merry Muffins, I learned to create several baked treats from just this ONE recipe! I took the […]
Someone’s In the Kitchen with FPIES I have always loved being in the kitchen and even though my eldest daughter’s FPIES diagnosis threw me for a loop, it didn’t change that love. Creating new recipes for her and her little sister, also diagnosed with FPIES, has become a way of […]
Our FPIES Journey: A Tribute of Gratitude By: Anna D’Ambra “We must find time to stop and thank the people who make a difference in our lives.”– John F. Kennedy Our story began on December 10th, 2018, when our then 6 month old daughter, Adelina Rose Carestia ate a tablespoon of oatmeal baby cereal for breakfast. She woke […]
Emergency bread. This may sound like a bizarre concept to families without allergies, and possibly even to those with. The first time I used the term, my husband* looked at me like I was crazy. “What’s emergency bread?” I explained what I meant by it, but it didn’t really […]
The FPIES Foundation is proud to present the second annual Global FPIES Day. This a day to bring greater awareness to FPIES, a day to educate families, professionals and communities. Today is a day to connect with one another, across barriers of land, ocean and language, in order […]
The FPIES Foundation Learning Library The Online Learning Library is a collection of multimedia resources to encourage the growth of awareness and education among medical professionals, families, and the communities that support individuals affected by FPIES. Click on the icon below each heading to view each Learning Library Chapter and […]
FPIES: Simple Words, Complex Realities By Nichole L. Huff, Ph.D., CFLE One evening last week, in reviewing the papers sent home in my kindergartner’s daily folder, I noticed a flyer for a school fundraiser. An ice cream social. On Friday my son could have a big scoop of ice cream from a […]
This year, in honor of Rare Disease Day, a family in the FPIES community hosted an awareness event for FPIES. We, at the Foundation, found the event very encouraging and asked them to share their story… Chase’s FPIES Challenge started out as a way for me to help my friends […]
This post is to honor fathers of children living with FPIES by sharing these stories of the journey of their families. Sharing both trials and successes gives a voice to all those struggling with this invisible diagnosis, and is a valuable tool for other families as well. We welcome this unique […]