A guest post by Laura Benjamin, MD. No one expects to find themselves in the back of an ambulance with their six month old baby during a relaxing Florida vacation, but that’s exactly where I ended up. My husband and I, both doctors, and three other couples, all also doctors, Read more…
From every corner of our world, COVID-19 has impacted us all in one way or another. As I sit here in my living room, in a state particularly hard hit, the evidence of this impact is all too clear. The stress, the risk of catching this illness, the changes in Read more…
Food Allergy Awareness Week (FAAW) is May 10-16 this year. Every year we join with Food Allergy Research and Education (FARE) to honor FAAW. We wanted to share some of the ways you can get involved and help build the growing awareness of different types of food allergies, such as Food Protein Induced Enterocolitis Syndrome (FPIES).
Planning meals for children can be challenging. You have to come up with a dish that is not only appealing to them but is also packed with nutritious ingredients that sometimes your child probably doesn’t like, and these difficulties grow tenfold when it comes to prepping meals for children with Read more…
We are so excited to share with you that a children’s book about life with FPIES was recently published! The book, “FPIES – The Mystery that Made My Brother Sick“, was written by a fellow parent of a child living with FPIES and is a real-life story about her son. Read more…
We, at The FPIES Foundation, love to follow the research! These are our top 10 picks for FPIES articles of 2019 (in no particular order). Each of these articles brings some new data or novel idea to the ‘table’. We are so thankful to all of the practitioners and researchers Read more…
Because we like to bring our community resources that may be helpful to them for the everyday, we sat down with Margaret Schmitt who is the creator/writer of “Allergy Hospitality”, an allergen friendly cookbook. This cookbook isn’t just for those living with food allergies but also for the friends and Read more…
This spiral-bound Workbook was created specifically for families managing FPIES, to help parents and caregivers stay organized and keep track of everything in one place!
Rare in How We Care The theme of this year’s Rare Diseases Day was “Show Your Stripes.” I was so excited when I first learned this– I feel like this theme really reflects our rare community, particularly our FPIES community, where I see all of you showing your stripes each Read more…
We love and appreciate the allergy friendly companies that provide foods to help expand our children’s diet. Today we would like to share a little about one of those companies, Amanda’s Own Confections. As always, be sure to contact the manufacturer to best determine whether or not the product may Read more…