The FPIES Foundation is collaborating with clinicians, researchers, and families affected by FPIES. We are looking for information from families to understand how FPIES can impact young people’s eating habits and behaviors. This survey is for all parents of children under the age of 18 with acute FPIES.
While attending an online event, Aspen Ideas: Health 2022, there was a discussion panel on the topic, “Partnering with Patients Strengthens Science”. One of the panelists, Sneha Dave, in discussing the importance of the condition community, said these words: “One thing we can’t forget – while we are waiting for a Read more…
A few months ago, we were introduced to Kallie and her mom, Rachele. Kallie introduced us to her breathwork cards and videos. Kallie is 7 years old and she loves swimming, playing with her friends and sister, horseback riding, creating art, and she loves doing breathwork with everyone in the Read more…
Talking about FPIES is a 3-part blog series by Angelika Sharma, FPIES Foundation volunteer. Explaining FPIES to your child You may not have conversations with your baby or small child yet, but you are already communicating with them about their FPIES every day. In part three of our Three-Blog-Post Series Read more…
Talking about FPIES is a 3-part blog series by Angelika Sharma, FPIES Foundation volunteer. Effectively sharing about your FPIES needs In the early days after an FPIES diagnosis, parents learn so much: from information about the diagnosis to navigating their new everyday life. As their days are re-shaped and the Read more…
Talking about FPIES is a 3-part blog series by Angelika Sharma, FPIES Foundation volunteer. How to Explain FPIES to Others As the parent or caregiver to a child with FPIES, you regularly find yourself having to explain the needs of your child: first with family and friends, then in places Read more…
Caregiver Anxiety and FPIES A guest post written and submitted by Mun Cho, Registered Dietitian and Food Allergy Parent. FPIES (Food Protein-Induced Enterocolitis Syndrome) is a non-IgE food allergy, which is different from the IgE-mediated food allergy that could potentially be anaphylactic. Acute FPIES involves excessive vomiting, which could lead Read more…
We love to hear about allergy-friendly food companies! Recently we had the opportunity to sit down with one for an interview! Here is our interview with Big Green Organic Foods: Millet Pasta! Tell us a little about your company and your aim to provide allergy-friendly services/products. Eating healthy should not Read more…
Recently, we learned of a parenting book for parents of children diagnosed with FPIES. We had an opportunity for an interview with author, Angelika Sharma, and here is what she shares about her book, “A Mother’s Guide to FPIES”. Tell us a little about your book and your aim in Read more…