The resource is called “Book Creator;” some of you (particularly teachers!) may already be familiar with this program. We have established a virtual “library” at The FPIES Foundation’s Book Creator page and are now inviting families to create FPIES-themed books for themselves and for the library!
The FPIES Foundation Partners with My PaTH Story Booth Post written by Amanda LeFew, Co-Director at The FPIES Foundation Select content in this article was used with permission from the My PaTH Story Booth’s website You have often heard us say, “Your greatest contribution to the Foundation is your Voice!” Read more…
This is an open letter to all healthcare professionals from a food allergy mama and Registered Dietitian. I am writing to you as a mother to children with both IgE mediated and non-IgE mediated food allergies. As many of you are aware, allergic reactions commonly seen in the media are IgE reactions — Read more…
Do you ever wish you had more opportunities for raising awareness about FPIES? Are you ever unsure of where to get started with raising awareness? The last day of February each year is “Rare Diseases Day;” this awareness day sponsored by NORD (the National Organization for Rare Disorders) is a Read more…
Happy 2021 to all! Now a full month into our New Year, we want to invite our community to join us in resolutions to spread FPIES education and awareness throughout 2021! With the state of the pandemic and many of us being homebound, outreach may be a bit of a Read more…
With a vision to learn more about the microbiome and its potential impact on individuals affected by FPIES, we invite you back to our Global FPIES Patient Insights Network (www.fpiesregistry.com), through our partnership with Invitae, to complete the latest patient survey, “FPIES and the Microbiome.” This survey seeks to learn Read more…
The temperature is changing, school breaks are coming, and its back to planning for those special holidays again! This year, things certainly may look a bit different, as many of us are opting to stick around the house and celebrate within our own walls, hoping to avoid exposure to COVID-19. Read more…
A FARE Collaborator blog When a family member is diagnosed with food allergies, life at home becomes somewhat more challenging. By changing the way you shop, cook and clean, you can enjoy meals that are safe for everyone. Stocking Your Kitchen Learn how to read food labels and make sure Read more…
Global FPIES Day is always a great time to educate ourselves further about the various aspects of living with FPIES, and Global FPIES Day 2020 was no exception! We hosted a great group of presenters who offered some fascinating insights for us all. Over the next few months, we will Read more…
Global FPIES Day is honored on Oct. 14th every year. Established in 2014, this day is set by The FPIES Foundation to recognize Food Protein-Induced Enterocolitis Syndrome (FPIES) while empowering those living with the diagnosis by providing tools, support, and resources for every day. It is also a day when Read more…