Making Do Recipes: FPIES, MCAS, EoE, Allergy Recipe Finder Tell us a little about your background and your aim to provide allergy friendly recipes: Our son, Elisha, started his life in the NICU due to breathing difficulties and low oxygen, and he continued to have multi-systemic symptoms throughout his infancy. Read more…
We, at The FPIES Foundation, are excited to tell you about some new amino-acid formula options! We sat down with April Clark and Kelli Miller, both Registered Dietitians and Clinical Specialists in GI & Allergy for Cambrooke, to talk about Cambrooke’s mission and their new amino acid-based formulas, EquaCare Jr. and Essential Care Jr.
If blueberries are totally your jam, then you’ll like this Roasted Blueberry + Chia Seed Jam recipe. It’s easy to make, flavorful, and healthier than store bought jams and jellies (bonus!).
The resource is called “Book Creator;” some of you (particularly teachers!) may already be familiar with this program. We have established a virtual “library” at The FPIES Foundation’s Book Creator page and are now inviting families to create FPIES-themed books for themselves and for the library!
The FPIES Foundation Partners with My PaTH Story Booth Post written by Amanda LeFew, Co-Director at The FPIES Foundation Select content in this article was used with permission from the My PaTH Story Booth’s website You have often heard us say, “Your greatest contribution to the Foundation is your Voice!” Read more…
This is an open letter to all healthcare professionals from a food allergy mama and Registered Dietitian. I am writing to you as a mother to children with both IgE mediated and non-IgE mediated food allergies. As many of you are aware, allergic reactions commonly seen in the media are IgE reactions — Read more…
Do you ever wish you had more opportunities for raising awareness about FPIES? Are you ever unsure of where to get started with raising awareness? The last day of February each year is “Rare Diseases Day;” this awareness day sponsored by NORD (the National Organization for Rare Disorders) is a Read more…
Happy 2021 to all! Now a full month into our New Year, we want to invite our community to join us in resolutions to spread FPIES education and awareness throughout 2021! With the state of the pandemic and many of us being homebound, outreach may be a bit of a Read more…
With a vision to learn more about the microbiome and its potential impact on individuals affected by FPIES, we invite you back to our Global FPIES Patient Insights Network (www.fpiesregistry.com), through our partnership with Invitae, to complete the latest patient survey, “FPIES and the Microbiome.” This survey seeks to learn Read more…
The temperature is changing, school breaks are coming, and its back to planning for those special holidays again! This year, things certainly may look a bit different, as many of us are opting to stick around the house and celebrate within our own walls, hoping to avoid exposure to COVID-19. Read more…