Does your child have FPIES?
We would like to know about your experience!
**May 8, 2023 UPDATE – This survey closes TODAY, May 8th**
The FPIES Foundation is collaborating with clinicians, researchers, and families affected by FPIES. We are looking for information from families to understand how FPIES can impact the eating habits and behaviors of young people. This survey is for all parents/caregivers of children under the age of 18 with Acute FPIES. We would love to hear from everyone whether eating has been or is an issue or not. The survey will ask detailed questions about your child’s most severe FPIES reaction and any difficulties they have had with feeding.
This survey is being conducted as part of a student research project for an MSc in Allergy at Imperial College London. While we recognize that many children with FPIES have no problems with eating, in some cases it can be associated with significant feeding difficulties and we want to find out more about this from the community of those living with FPIES. This survey is asking parents and carers of children with Acute FPIES about any difficulties with feeding that they may or may not have. This will help us to understand how common difficulties with feeding are in children with FPIES, as well as the specific difficulties with feeding that are most frequently encountered. There are also questions that will help us understand what tools are most helpful in addressing difficulties with feeding among children with FPIES.
This survey takes approximately 15 minutes to complete. Your participation is completely voluntary and all of your responses are anonymous. No personally identifiable information is collected or associated with your responses. There is no compensation for responding. The survey launches in April 2023 and will close in May 2023.
To learn more about the survey, read more here: https://imperial.eu.qualtrics.com/jfe/form/SV_74elQchW95gVhWu
Thank you for your consideration in participating in this survey!
This post is published by Joy Meyer, Co-Director of The FPIES Foundation.