Recently, we learned about an award winning Science Fair project that raised awareness to food allergies. It was done by a 6th grade student and today we’d like to share a little about that project with you! Tell us a little about yourself. I am Ameya Balaji, studying in 6th grade, and Read more…
I sat nervously at the conference table, introducing myself to a room of new faces, new faces that I sincerely hoped would help to make accommodations for my daughter when she entered kindergarten in the next year. I had reason to be nervous—we had never found a preschool willing to Read more…
Making Do Recipes: FPIES, MCAS, EoE, Allergy Recipe Finder Tell us a little about your background and your aim to provide allergy friendly recipes: Our son, Elisha, started his life in the NICU due to breathing difficulties and low oxygen, and he continued to have multi-systemic symptoms throughout his infancy. Read more…
The FPIES Foundation Partners with My PaTH Story Booth Post written by Amanda LeFew, Co-Director at The FPIES Foundation Select content in this article was used with permission from the My PaTH Story Booth’s website You have often heard us say, “Your greatest contribution to the Foundation is your Voice!” Read more…
From every corner of our world, COVID-19 has impacted us all in one way or another. As I sit here in my living room, in a state particularly hard hit, the evidence of this impact is all too clear. The stress, the risk of catching this illness, the changes in Read more…
Planning meals for children can be challenging. You have to come up with a dish that is not only appealing to them but is also packed with nutritious ingredients that sometimes your child probably doesn’t like, and these difficulties grow tenfold when it comes to prepping meals for children with Read more…
This spiral-bound Workbook was created specifically for families managing FPIES, to help parents and caregivers stay organized and keep track of everything in one place!
Rare in How We Care The theme of this year’s Rare Diseases Day was “Show Your Stripes.” I was so excited when I first learned this– I feel like this theme really reflects our rare community, particularly our FPIES community, where I see all of you showing your stripes each Read more…
Make Like A Zebra and #ShowYourStripes Every year, my daughters and I look forward to Rare Diseases Day. It is such a great opportunity to raise awareness, but I feel like it also is a wonderful reminder to them that they are not alone– there are kids all over the Read more…
This gap between patients and clinicians was evident upon my son’s diagnosis, but was becoming more clear the more we learned about FPIES. Fortunately, the FPIES Foundation created the FPIES Global Patient Registry