In early 2020, we conducted a community survey to better understand the challenges and unmet needs in Food Protein-Induced Enterocolitis Syndrome from the perspectives of parents and adult patients! Researchers were very interested in learning more and have published a paper on what they have learned, from YOU! The results of the survey show researchers that the key priorities for the community are: better awareness among health professionals, having diagnostic tests to avoid misdiagnosis, as well as predictive tests to guide safer food trials. Future research and initiatives will be guided by these priorities!
We sincerely thank Dr. Marta Vazquez-Ortiz, Dr.Ekaterina Khaleva, Dr. Shubhasree Mukherjee, Dr. Sonsoles Infante, Dr. Qian Yuan, Dr.Federico Martinon-Torres, Rebecca C Knibb, Ph.D. for their work on the publication of the journal article, “Challenges and unmet needs in FPIES from the parents and adult patients’ perspective – an international survey”. Check out our open-access publication in The Journal of Allergy and Clinical Immunology: In Practice! An Open Access article (Free and open for everyone to read!).
Vazquez-Ortiz M, Khaleva E, Mukherjee S, Infante S, Meyer J, LeFew A, Yuan Q, Martinon-Torres F, Knibb RC. Challenges and unmet needs in FPIES from the parents and adult patients’ perspective: An international survey. J Allergy Clin Immunol Pract. 2023 Apr;11(4):1306-1309.e2. doi: 10.1016/j.jaip.2022.12.017. Epub 2022 Dec 27. PMID: 36581071.
We continue to provide support, build awareness, further education, and advance research into this diagnosis. We are looking forward to sharing our upcoming projects with you. You can stay in touch and learn more on our social media pages and email newsletters.
Thank you for your continued support of The FPIES Foundation.
Joy Meyer and Amanda LeFew