“I Have FPIES” is a rhyming story from diagnosis to learning to live with this rare food allergy condition. It is filled with universal experiences that children and families navigating FPIES will understand and relate to. It provides a sense of community for children who may feel different than their friends and family and a sense that they are not alone with their feelings!
August 31st marks the day The FPIES Foundation was launched. For 13 years, The FPIES Foundation has been committed to providing a credible and interactive support resource for this easily misunderstood allergic disorder to make the everyday lives of those living with Food Protein-Induced Enterocolitis Syndrome just a little bit Read more…
Navigating your child’s Food Protein-Induced Enterocolitis Syndrome (FPIES) can be tricky, but know that many parents face this challenge, so you’re not alone. A 2021 review shows that FPIES may not be as rare as it once was. This diagnosis may feel limiting for parents who want their children to explore new foods. However, proper research will help you make informed decisions, so your child still enjoys a tasty and balanced diet.
The FPIES Foundation is proud to partner with Dayspring Pens through a donation of custom engraved pens. The team at Daysprings Pens is honored to be able to donate to an organization that works so diligently to provide the help and resources needed to overcome the challenges of Food Protein-Induced Read more…
Researchers were very interested in learning more and have published a paper on what they have learned, from YOU! The results of the survey show researchers that the key priorities for the community are: better awareness among health professionals, having diagnostic tests to avoid misdiagnosis, as well as predictive tests to guide safer food trials. Future research and initiatives will be guided by these priorities!
The FPIES Foundation is collaborating with clinicians, researchers, and families affected by FPIES. We are looking for information from families to understand how FPIES can impact young people’s eating habits and behaviors. This survey is for all parents of children under the age of 18 with acute FPIES.
While attending an online event, Aspen Ideas: Health 2022, there was a discussion panel on the topic, “Partnering with Patients Strengthens Science”. One of the panelists, Sneha Dave, in discussing the importance of the condition community, said these words: “One thing we can’t forget – while we are waiting for a Read more…
A few months ago, we were introduced to Kallie and her mom, Rachele. Kallie introduced us to her breathwork cards and videos. Kallie is 7 years old and she loves swimming, playing with her friends and sister, horseback riding, creating art, and she loves doing breathwork with everyone in the Read more…
Talking about FPIES is a 3-part blog series by Angelika Sharma, FPIES Foundation volunteer. Explaining FPIES to your child You may not have conversations with your baby or small child yet, but you are already communicating with them about their FPIES every day. In part three of our Three-Blog-Post Series Read more…
Talking about FPIES is a 3-part blog series by Angelika Sharma, FPIES Foundation volunteer. Effectively sharing about your FPIES needs In the early days after an FPIES diagnosis, parents learn so much: from information about the diagnosis to navigating their new everyday life. As their days are re-shaped and the Read more…