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Support

Inspirational stories

Rare in How We Care

Rare in How We Care The theme of this year’s Rare Diseases Day was “Show Your Stripes.” I was so excited when I first learned this– I feel like this theme really reflects our rare community, particularly our FPIES community, where I see all of you showing your stripes each Read more…

By thefpiesfoundation, 2 years2 years ago
Helping families

Paying Medical Bills as Simply as Possible

Paying Medical Bills as Simply as Possible By Margaret Hancock For those navigating FPIES – or any rare disease – hospital, specialist, nutritional, and additional medical bills can be quite confusing and time-consuming. I am grateful for a brief stint that I had with an insurance firm as I learned through Read more…

By thefpiesfoundation, 3 years3 years ago
Living with FPIES

Skills We Have Learned While Caring For Our Children Living With FPIES

This post is inspired by an FPIES article appearing on The Mighty “What I’ve learned as a mother of a child with FPIES”.  At the end of the article, the author mentions her ability to know the cross contamination of common grocery store items.  When we shared this article from Read more…

By thefpiesfoundation, 3 years3 years ago
Helping families

Traveling to Walt Disney World with FPIES

Traveling to Walt Disney World with FPIES By: LL McKenzi Soon after packing up and moving our family south, life turned upside down as our infant son was diagnosed with Food Protein-Inducted Enterocolitis Syndrome (FPIES). We were one of the first families here in the upstate of South Carolina to Read more…

By thefpiesfoundation, 3 years ago
In The News

Global FPIES Day 2017: Steps4FPIES

We thank you for making every step count by joining with us in our ongoing efforts to build awareness, increase support and advance research for individuals affected by Food Protein-Induced Enterocolitis Syndrome (FPIES) for our 4th annual Global FPIES Day. This Global FPIES Day, we witnessed so many #Steps4FPIES! Whether Read more…

By thefpiesfoundation, 3 years3 years ago
Helping families

Embracing the Gadgets

Before I had my two children, I was never much of a kitchen gadgets or appliances person. Most of what I needed to do in the kitchen, I could do by hand, and I didn’t want to pay for them, didn’t want to clean them, and I didn’t want to Read more…

By thefpiesfoundation, 3 years3 years ago
In The News

Raising FPIES awareness on The Mighty!

A diagnosis of FPIES can be life-altering.  So, when The Mighty asked our community for some of the things parents of children living with FPIES are doing, because of the diagnosis, that other people may not realize, the response was incredible. With over 150 million readers and thousands of contributors, Read more…

By thefpiesfoundation, 3 years3 years ago
Helping families

An Interview with the Awareness Critters Creator!

I was working on my master’s degree in health communication when I met my husband. Fast forward a year and a half later, I was sitting in the NICU with our newborn daughter feeling like I should have paid more attention to the practical aspects of the degree I had Read more…

By thefpiesfoundation, 4 years3 years ago
Support our Cause

Global FPIES Day 2016 Impact: How we made a difference

It’s been a month since we celebrated Global FPIES Day and we’d like to take a look back at all we shared and accomplished together. Tools that Build Bridges This year’s theme was “Tools that Build Bridges” and we were able to provide some amazing new tools to help families Read more…

By thefpiesfoundation, 4 years3 years ago
Inspirational stories

We’re Partnering With The Mighty!

We’re thrilled to announce a new partnership that will bring our resources in front of The Mighty‘s wide-reaching readership. We will now have a growing home page on The Mighty and appear on many stories on the site. The Mighty is a story-based health community focused on improving the lives of people facing Read more…

By thefpiesfoundation, 4 years3 years ago

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The FPIES Foundation is an Incorporated 501(c)(3) Non-Profit organization. The FPIES Foundation does not provide medical advice, diagnosis or treatment. Information provided is intended for supportive, awareness and educational purposes and not as medical advice.


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