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Inspirational stories

Helping families

Researchers are Listening for Your Voice!

The FPIES Foundation Partners with My PaTH Story Booth Post written by Amanda LeFew, Co-Director at The FPIES Foundation Select content in this article was used with permission from the My PaTH Story Booth’s website You have often heard us say, “Your greatest contribution to the Foundation is your Voice!” Read more…

By thefpiesfoundation, 4 yearsMay 10, 2021 ago
Helping families

No Day at the Beach: A Doc Mom’s FPIES Journey

A guest post by Laura Benjamin, MD. No one expects to find themselves in the back of an ambulance with their six month old baby during a relaxing Florida vacation, but that’s exactly where I ended up. My husband and I, both doctors, and three other couples, all also doctors, Read more…

By thefpiesfoundation, 5 yearsJuly 1, 2020 ago
Inspirational stories

Rare in How We Care

Rare in How We Care The theme of this year’s Rare Diseases Day was “Show Your Stripes.” I was so excited when I first learned this– I feel like this theme really reflects our rare community, particularly our FPIES community, where I see all of you showing your stripes each Read more…

By thefpiesfoundation, 6 yearsMarch 27, 2019 ago
Inspirational stories

We’re Partnering With The Mighty!

We’re thrilled to announce a new partnership that will bring our resources in front of The Mighty‘s wide-reaching readership. We will now have a growing home page on The Mighty and appear on many stories on the site. The Mighty is a story-based health community focused on improving the lives of people facing Read more…

By thefpiesfoundation, 9 yearsNovember 12, 2016 ago
Inspirational stories

The Miracle of FPIES

Every family is unique and weaves an important piece in our overall understanding of FPIES as well as the impact– medical and non-medical– this rare diagnosis has on our families, children and professionals. As you read the story that follows, please remember that though your family’s story may differ in Read more…

By thefpiesfoundation, 9 yearsMay 13, 2016 ago
Inspirational stories

Standing up for FPIES – Nicole’s story

My daughter Nicole was diagnosed with FPIES when she was 4 years old.  She had struggled with chronic issues since 18mths of age and we were more than thankful to have a diagnosis.  Nicole has several safe foods, including Chicken, Eggs, EleCare Jr Vanilla, Apples, celery, zucchini, carrots and peas.  Read more…

By thefpiesfoundation, 11 yearsJuly 3, 2014 ago
Inspirational stories

Honoring Fathers: FPIES, from Dad’s Perspectives

This post is to honor fathers of children living with FPIES by sharing these stories of the journey of their families.  Sharing both trials and successes gives a voice to all those struggling with this invisible diagnosis, and is a valuable tool for other families as well.  We welcome this unique Read more…

By thefpiesfoundation, 11 yearsJune 15, 2014 ago
Inspirational stories

Kids in Action: Meet Sarah!

She’s 9-years old. She loves the A-Team and Selena Gomez. And, she has FPIES. Meet Sarah from “Sarah’s FPIES Clubhouse.” We recently had the opportunity to interview Sarah and her mom and learned that Sarah is one courageous little girl with a huge heart, a love for animals and a Read more…

By thefpiesfoundation, 11 yearsMay 1, 2014 ago
Inspirational stories

Our History: Building a Strong Foundation

Our Families’ Beginnings: Joy’s family: Our son, Samuel, was sick for months before we knew his symptoms had a name. Food Protein Induced Enterocolitis Syndrome is what the allergist confirmed after months of trying to pinpoint it on our own, with just the Pediatrician and Dietitian help. We had been Read more…

By thefpiesfoundation, 12 yearsAugust 30, 2013 ago
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The FPIES Foundation is an Incorporated 501(c)(3) Non-Profit organization. The FPIES Foundation does not provide medical advice, diagnosis or treatment. Information provided is intended for supportive, awareness and educational purposes and not as medical advice.


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