Growing FPIES Awareness Join Heather Martin as she explores 5 of the common myths related to Food Protein Induced Enterocolitis Syndrome (FPIES). Heather is a Licensed and Registered Dietitian, mother of a child living with FPIES and volunteer for The FPIES Foundation. Video by Jackie Morrow, media specialist at Nordstrom […]
Planning Your Summer Adventures, When FPIES is Your Uninvited Travel Companion Backpacks are starting to gather dust, you’ve inflated the kiddie pool . . . . summer must be here! At our house, we are always thrilled for the arrival of summer. It allows us to take a breath, stock […]
Tools for Self-Care and Support Join co-director Amanda LeFew (MT-BC) as we explore various types and purposes of support groups, as well as tips and techniques for creating and maintaining your own FPIES support group. For more information, visit our comprehensive tutorial . FPIES as a diagnosis can bring about […]
The holiday season is upon us once more! Whether seeing friends and family virtually or in-person, whether enjoying at-home celebrations or traveling far and wide for the festivities, it is a great time to relax and enjoy good company. Unfortunately for many of us, the holiday season can lead to […]
Learn the Basics About FPIES About Adult FPIES (PDF) Have you, or has someone you love, been diagnosed with FPIES? Maybe you have heard this myth: “But wait! FPIES is a condition that only affects infants and children!” In fact, FPIES CAN present in adults, of any age, though the […]
Happy 2021 to all! Now a full month into our New Year, we want to invite our community to join us in resolutions to spread FPIES education and awareness throughout 2021! With the state of the pandemic and many of us being homebound, outreach may be a bit of a […]
With a vision to learn more about the microbiome and its potential impact on individuals affected by FPIES, we invite you back to our Global FPIES Patient Insights Network (www.fpiesregistry.com), through our partnership with Invitae, to complete the latest patient survey, “FPIES and the Microbiome.” This survey seeks to learn […]
Global FPIES Day is always a great time to educate ourselves further about the various aspects of living with FPIES, and Global FPIES Day 2020 was no exception! We hosted a great group of presenters who offered some fascinating insights for us all. Over the next few months, we will […]
Global FPIES Day is honored on Oct. 14th every year. Established in 2014, this day is set by The FPIES Foundation to recognize Food Protein-Induced Enterocolitis Syndrome (FPIES) while empowering those living with the diagnosis by providing tools, support, and resources for every day. It is also a day when […]
Meet our “Allies For FPIES,” our partners for Global FPIES Day, 2020. They can be found here and on this page. This year, we honor all of those who stand with our community to raise awareness, build community support, expand research, and improve quality of care for all those affected […]