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Questions voiced by the FPIES community.


Answers
from the desks of the Medical Advisory Board.

What is FPIES?

Questions:

  1. My child was just diagnosed with FPIES– now what?
  2. What is a NonIgE food allergy (and how FPIES differs from typical food allergies)?
  3. I suspect FPIES, but what do I do if my child’s doctor is not familiar with FPIES?
  4. How do I find a knowledgeable doctor to assess my child for an FPIES diagnosis?

Answers: (click here)

Stethoscope

FPIES Common Symptoms:

Questions:

  1. What is the difference between MSPI and FPIES?
  2. My child has additional symptoms that are not mentioned in the FPIES definition. Could he/she still have FPIES?
  3. Why was my child able to eat his/her trigger foods one or more times before causing a reaction?
  4. In what ways can I help my child during a reaction?
  5. What do I do if I think my child is showing symptoms of shock?

 Answers: (click here)

FPIES Common Triggers:

Questions:

  1. Do the all the common triggers cause reactions in all children who have been diagnosed with FPIES?
  2. I think my child is reacting to foods through my breast milk. 

Answers: (click here)

FPIES Diagnosis and Testing:

Questions:

  1. What can I expect at the first allergist and/or gastroenterologist appointment?
  2. What do I need to know about common tests used to rule out/in FPIES (i.e. types and descriptions)?
  3. What do I need to know about other conditions that may mimic FPIES?
  4. Can my child test positive for IgE allergies and still have FPIES?

 Answers: (click here)

FPIES Treatment and Management: 

Questions:

  1. What are the goals of long term management of FPIES?
  2. What medical professionals are important in monitoring my child’s care plan?
  3. Is there a cure for FPIES?
  4. Is FPIES hereditary?
  5. What defines a food trial vs. a food challenge?
  6. Can certain medications stop or lessen an FPIES reaction?
  7. How do I safely provide foods for my child? 
  8. Can non-food products cause reactions (medications, craft supplies, etc)?
  9. Can secondary conditions occur in my child as a complication of his/her FPIES symptoms?

 Answers: (click here)

Answers provided collaboratively by Medical Advisory Board members: Sakina S. Bajowala, MD;  J. Andrew Bird, MD; April Clark, RD/LD; John J. Lee, MD; Fred Leickly, MD, MPH; David R. Naimi, DO; Harumi Jyonouchi, MD; Scott H. Sicherer, MD; Anna Nowak-Wegrzyn, MD.

Copyright © 2011, The FPIES Foundation

Page published: August 2011 Last update: Jan.5, 2015. Copyright © 2011,The FPIES Foundation