Being a brother or sister can be a lot of fun! But it can be hard to see a brother or sister get sick from FPIES reactions.
If you have a brother or sister living with FPIES, you may have a lot of questions, you may not understand what FPIES means, or you might need some extra help because of stressful feelings. You might want to find ways to help your brother or sister– but how?
You are not alone! There are many other brothers and sisters out there going through a lot of the same things you and your family are! There are also resources that can help!
Check out the tools and resources below and if you need to, ask a parent to help you to get in touch with these groups for more help and support.
Super Stars and Super Heroes!
Your brother or sister is a rock star for living with FPIES, but you are a super star, too, in the ways you help him or her (and your family!) every day!
How do you help already?
- Playing with your brother or sister to keep them busy at medical appointments
- Helping out with chores around the house
- Making your brother or sister laugh by telling funny stories or silly jokes
- Drawing pictures or writing cards for your brother or sister when they are feeling sick
Groups Helping Brothers and Sisters
A nationwide support group and resource for brothers and sisters of children affected by illness and/or disabilities
Help For Your Moms and Dads