The FPIES Foundation.

By visiting this site, you agree to be bound by the following terms of use.  If you do not wish to be bound by these terms of service, you may not access or use this site.

1. Warranty Disclaimers and Limitation of Liability.

The information appearing on The FPIES Foundation website (FPIESFoundation.org) and The FPIES Foundation Support Forums is presented for your support and general informational purposes only.  It does not constitute medical advice or treatment, and it does not replace the relationship that exists between you and your physician.

Please consult with a qualified health care provider to meet your child’s individual health, diet, and nutritional needs.  Always contact the manufacturer of any food product to ensure that it is safe with respect to your child’s unique allergy issues.

Do not disregard any medical advice you have received, and do not stop, change or delay seeking medical care because of anything you have read on The FPIES Foundation Web site or on The FPIES Foundation Support Forums or Chat Rooms.

While the content published on this Web site by The FPIES Foundation is believed to be accurate, errors sometimes occur.  You must evaluate the accuracy, completeness, and usefulness of all opinions, advice, services, and other information found on this site.

Statements and opinions expressed in our message boards, chat rooms, newsletters, blog, and private messages should be viewed and used cautiously.  This information represents the views of the authors, and does not represent the views, ideas, opinions, or advice of The FPIES Foundation.  THIS INFORMATION HAS NOT BEEN REVIEWED BY THE FPIES FOUNDATION’S MEDICAL ADVISORY BOARD.

The FPIES Foundation does not undertake editorial control of any messages posted, nor does it actively monitor the site for inappropriate or inaccurate messages. You use any information or advice obtained from other readers through any editorials, message board, chat area, or other mechanism at your own risk. Content appearing on the message boards is intended for readers ages 14 years and older. For those under the age of 14, adult guidance is recommended.

THE FPIES FOUNDATION OFFERS THIS SITE AND ITS CONTENT WITHOUT ANY EXPRESS OR IMPLIED WARRANTY.  THE FPIES FOUNDATION DISCLAIMS ANY IMPLIED WARRANTIES OF MERCHANTABILITY OR FITNESS FOR A PARTICULAR PURPOSE.  THE FPIES FOUNDATION IS NOT LIABLE FOR INACCURACY, MISTAKES, ERRORS, OR OMISSIONS OF ANY KIND.  THE FPIES FOUNDATION IS NOT LIABLE FOR ANY LOSS OR DAMAGE CAUSED BY YOUR RELIANCE ON INFORMATION OBTAINED FROM THIS WEBSITE. THE FPIES FOUNDATION IS NOT LIABLE FOR ANY INDIRECT, SPECIAL, INCIDENTAL OR CONSEQUENTIAL DAMAGES ARISING OUT OF YOUR USE OF OR RELIANCE ON ANY CONTENT OR MATERIALS ON THE WEBSITE. YOU ASSUME ALL RISKS OF USE AND MUST INDEMNIFY AND HOLD THE FPIES FOUNDATION, ITS DIRECTORS, OFFICERS, EMPLOYEES, VOLUNTEERS AND AGENTS HARMLESS FROM AND AGAINST ANY AND ALL DAMAGES, LIABILITIES, LOSSES, COSTS, AND EXPENSES, INCLUDING REASONABLE ATTORNEY’S FEES, ARISING OUT OF OR RELATED TO USE OF INFORMATION, SERVICES OR PRODUCTS OFFERED OR PRESENTED ON THIS SITE.

2. Ownership.

Subject to these Terms of Use, The FPIES Foundation grants you a limited, non-exclusive, license to view the materials contained on this site. The information on the FPIESFoundation.org Web site, including the design and organization, trademarks, logos, databases and graphics are Copyright © 2011, The FPIES Foundation. All rights reserved, unless otherwise noted.

Original materials by The FPIES Foundation are for personal use only.  You may use these materials for educational purposes, but only if your use of the materials is non-commercial and nonprofit in nature.  If you use any of these materials, you must use them in printed form, and must include: “Reprinted from FPIESFoundation.org” and the date printed.  You may not otherwise reprint or electronically reproduce all or any part of the materials on the FPIESFoundation.org website without advance written permission from The FPIES Foundation.

Information on this website owned or copyrighted by any individual or entity other than The FPIES Foundation is for personal use only.  You may not otherwise reprint or electronically reproduce all or any part of this material without advance written permission from the owner of the information.

If you contribute content, including message board postings, you grant The FPIES Foundation a perpetual, limited-use license to use all or part of your contribution in our published materials.  The FPIES Foundation may edit or comment editorially on any submissions.  These materials will not be treated as privileged or confidential.

3. Links to Other Sites.

The FPIES Foundation Medical Liaisons have compiled links that have been reviewed and meet the criteria of our Link Policy.  If you use the FPIESFoundation.org website, you acknowledge that these links are to websites operated by parties that are not affiliated with The FPIES Foundation.  The FPIES Foundation is not responsible for, and makes no representation concerning, the content of third-party links or websites.  By using the FPIESFoundation.org, you acknowledge this limitation and release The FPIES Foundation from all liability for damages that may result from using these links and websites.

Links to third-party websites are provided solely as a service to The FPIES Foundation users.  The FPIES Foundation does not endorse or sponsor these organizations, their programs, or their products, and you should not infer any endorsement or sponsorship.

4. Authorship and Review: 

Authorship and Review of All Website Content:

The FPIES Foundation is committed to offering credible and up-to-date information about the FPIES diagnosis, management strategies and the existing body of research.

Unless otherwise noted in the text of an article or document, all content on our websites (www.fpiesfoundation.org and www.fpiesday.com) and blogsite (www.fpiesfoundation.blogspot.com) is authored by The Executive Board of The FPIES Foundation and/or The Foundation’s Medical Advisory Board (MAB). All medical content is carefully reviewed and edited where necessary for accuracy and clarity of information by the MAB.

Members of the Executive Board are listed here and members of the Medical Advisory Board are listed here.

Translation of Documents Containing Medical Information:

All translations are performed by professionals possessing expertise in the medical field as well as the language in which the translation is made. Translations are also reviewed by individuals who are native speakers of the language in question. The documents on our website that are translated into Spanish have been made by our Medical Advisory Board member, Dr. Sergio Negre Policarpo, who possesses expertise in the field of Gastroenterology, in the diagnosis of FPIES, and in the Spanish language.

5. Partnerships:

Some content on The FPIES Foundation’s website is developed in partnership with other organizations. The authorship of such content is noted within each specific article, document, and/or webinar as applicable. Ownership of content developed in partnership with another organization or organizations is shared among those involved in its authorship. All content created via partnership is also carefully reviewed and edited where necessary for accuracy and clarity of information by our MAB.

Organizations that The FPIES Foundation decides to partner with are carefully reviewed for credibility and reliability of resources before The FPIES Foundation initiates projects relating to partnerships. Partnerships are based upon the credibility of the organizations in question and the applicability of resources such organizations may offer in regards to benefiting the community of families and medical providers who support individuals diagnosed with FPIES.

6. Your Registration Obligations.

By using this service, you represent that you are of legal age and will provide true and accurate information in completing the site registration process.  We may terminate your use of this site if we suspect that you have provided false, inaccurate, or misleading information. Content on this site (www.fpiesfoundation.org and www.fpiesday.org) and on our support forum (www.thefpiesfoundation.hoop.la.com) is developed for readers ages 14 and older.

7. Our Website’s Privacy Policy.

Information that you share with The FPIES Foundation is subject to our Privacy Policy.

8. Advertising

Our site does not host any form of advertising.

9. Communications.

By registering as a member of FPIESFoundation.org, or by subscribing to our newsletter and support boards, you may receive communications from us, including invitations to contribute to our fundraising efforts. If you do not wish to receive communications from The FPIES Foundation at any point after you register, you may cancel your registration by contacting us.

10. Acceptable Behavior for Message Boards, Private Messaging, Chats, and Other Interactive Features on Our Websites, blog, and forums.

The FPIES Foundation expects our members and site visitors to abide by common standards of decency and courtesy. The FPIES Foundation may remove any posted item it deems objectionable, offensive, inappropriate, or not in the best interests of the organization. Members or visitors who abuse any interactive features, including the message boards, private messaging, or chat areas will be banned from future participation on the site.

The following will not be permitted in our message board, private messaging or chat rooms:

· Posting rude, offensive, discriminatory, harassing, vulgar or obscene items;
· Posting illegal, fraudulent, deceptive, or misleading items;
· Impersonating others or creating multiple identities;
· Posting items in violation of copyright, trademark or other intellectual property rights;
· Engaging in personal attacks or posting items that appear to slander others;
· Posting commercial advertisements or self-promotion, including announcements, or testimonials of web sites, services, businesses, products, online groups/lists, etc. in which you have a personal interest or involvement, or from which you derive some kind of remuneration;
· Using your business name as a user ID, signature line or avatar;
· Posting information about treatments or cures without basis in scientific fact;
· Offering to buy, sell or swap items (donating or giving away items in exchange for postage or shipping is acceptable);
· Posting announcements about research projects, solicitations of subjects for interviews or studies, conducting surveys, polls, or otherwise gathering information about members for anything other than personal use without the expressed permission of The FPIES Foundation;
· Posting announcements about fundraisers for other organizations or personal requests for money, goods, or services without the expressed permission of The FPIES Foundation; and
· Posting items about political elections, candidates, or party affiliations.

You may not “Harvest” email addresses from our Websites or Web services or transfer of email addresses for the purpose of sending email.

You must disclose any financial interests, commercial funding, or affiliations related to the subject of any posts you make on the message boards or chat rooms.

You may report any complaints or suspected violations regarding message board or chat postings by using the “Alert an Administrator” feature of the message boards and chat rooms.

Content appearing on the message boards is intended for readers ages 14 years and older. For those under the age of 14, adult guidance is recommended.

11. Social Media Policy:

Visitors are encouraged to comment on our page — that’s part of why we’re here, to raise awareness to FPIES and the tools and resources available from The FPIES Foundation. We may not respond to every comment, particularly those that may deal with confidentiality or privacy. We expect a basic level of civility; having mutual respect for all member. Profanity or abusive language will be deleted and member banned. Posts that are off-topic, solicitations, private or business matters, or posts clearly promoting a commercial product generally won’t last long. Please note this policy also applies to all of our other social media presences (our blog, Twitter, YouTube, etc.).. What you read is not a substitute for professional medical advice, diagnosis, or treatment. The FPIES Foundation does not provide medical advice, diagnosis or treatment. The information provided on this our social media platforms are intended for supportive, awareness and educational purposes and not as medical advice. It is not a substitute for care by a trained medical provider. For individualized medical advice, please consult a physician. We reserve the right to make adjustments to this policy as needed.

9. Applicable Law And Venue.

This Agreement must be interpreted, construed, and enforced in all respects in accordance with the laws of the State of  Minnesota. You irrevocably consent to the jurisdiction of the courts of the State of Minnesota in connection with any action concerning these Terms of Use.

10. The FPIES Global Patient Registry

  • This registry is operated on the Patient Crossroads CONNECT platform and adheres to the Patient Crossroadsprivacy policy and terms of use.
  • For questions regarding the registry’s privacy policy, terms of use, and/or any other questions regarding the FPIES Global Patient Registry, please email us: contact@thefpiesfoundation.org.

11. Modification to Terms of Service and User Agreement.

The FPIES Foundation reserves the right to modify these terms of use and to terminate your access to and use of the services at any time and without prior notice.

Page published:  June 20, 2012. Last update: Nov. 21, 2016. Copyright © 2012, The FPIES Foundation