On May 15, 2010 I went to the grocery store after feeding my 6 month old daughter rice cereal and putting her to sleep. I came back a short while later to find her grey, cold, unresponsive, and vomiting repeatedly and profusely as my husband held her in his arms. We rushed to the emergency room (for the first time); me holding my child in my arms in the car the whole way chanting, “It’s okay. It’s okay. You’re going to be okay. You can do it. You can make it. We’ll be there soon. Keep breathing. You can do it.” We left the ER many hours later without any answers. That was our start down a long road filled with questions, fear and uncertainty. Our world really changed that night, even though we didn’t know it at the time.
Genevieve has ‘classic’ FPIES. She reacts to rice, soy and oats although, to date, she also has 26 foods on her safe list. Like most families, our road to diagnosis was difficult and filled with an overwhelming number of doctor appointments, tests and fear. However, we are hopeful that Genevieve will outgrow her FPIES. Although FPIES has brought us many trials – with doctors, with acceptance, with understanding, with logistics and, of course, with food, it has also brought us knowledge, faith, determination, patience, an incredible support system and a better appreciation of family, our health and the blessings we do have in our lives.
Follow Ginny’s Journey:
Ginny’s Journey: Another FPIES mom blogging
The FPIES Foundation provides suggested links to other Web sites as a convenience to you. The Foundation encourages you to evaluate websites yourself and discuss the information you find with your health care provider(s). Use of our Web site constitutes acknowledgment and understanding by the user that within our Website there may be links to other Web sites that are operated by parties or individuals that are not affiliated with The FPIES Foundation. Read more on our link policy at: https://fpiesfoundation.org/about-us-link-policy/ | The FPIES Foundation
Page published: June 19, 2012. Copyright © 2012,The FPIES Foundation