Registry and Research

Dr. Marta Vazquez-Ortiz discusses the innovative work and goals of the BIO-FPIES Study Network! The BIO-FPIES Study Network, a partnership between Imperial College London, GENVIP in Spain, and ten tertiary allergy centers in Spain and Italy, is aiming at improving diagnosis and management of Acute FPIES.

Learning about ongoing research and how you and your family can contribute to the body of existing data are important factors in living with an FPIES diagnosis.

Learning about the PIN (the FPIES Foundation Global Patient Registry Patient Insights Network) and how you can get involved is a great place to start! Be sure to send us any questions you may have about becoming a part of this amazing tool to power research!

Are you a clinician looking to partner with The FPIES Foundation for research? Connect with us at contact@thefpiesfoundation.org to learn more. We look forward to hearing from you!

Dr. Jeanelle Boyer, who is currently researching the microbiome in the gut of infants affected by FPIES 12 months old and younger, gives us an update her intriguing study.

Dr. Jeanelle Boyer, is a professor at Keene State College who continues to research the microbiome in the gut of infants affected by FPIES. Dr. Boyer provides the FPIES community with an update on her latest and continued research. Dr. Boyer is accompanied by her daughter, her inspiration behind her research, in this video update for Global FPIES Day 2017.

Former CEO Kyle Brown of Patient Crossroads explains how the FPIES Global Patient Registry can help the medical and patient communities affected by FPIES.
The FPIES Foundation Global Patient Registry: www.fpiesregistry.com

Page published: 28 June 2022. Copyright © 2022, The FPIES Foundation