FPIES is a rare diagnosis that is often not fully understood, which can make it challenging for parents and medical providers.  The FPIES Foundation partnered with ThriveRx to present “Advocating for your child in the Healthcare system.  The purpose of the webinar is to help families navigate the healthcare system by providing advocacy actions, tools, and resources to assist them and their providers as they care for their children living with FPIES.  You will learn:

  • Actions that an effective advocate takes;ThriveRx Title Slide
  • Helpful tools to utilize when advocating;
  • How to successfully coordinate care; and
  • Strategies for strengthening your child’s voice.

The recording of this webinar can be accessed here: https://www1.gotomeeting.com/register/270062481

PDF of this Webinar  for you to follow along is provided, with further details and links to additional resources and references for your convenience.

Whether your visit is for a diagnostic work-up or for follow-up care,  being prepared for appointments can help you to get the maximum benefit of the time spent with your child’s provider.

 We hope these tools can help!

 

 

 

Page published:  Aug 1, 2012.  Copyright © 2012, The FPIES Foundation