The Care Plan – The FPIES Foundation

In addition to continuing your relationship with your child’s primary care provider, the goal of your medical team will be to provide a comprehensive care plan for your child to obtain the optimal nutrition necessary to assure appropriate growth and development in a safe environment. Your child’s medical team wants to see him or her have successes and a good quality of life while navigating this diagnosis, just as you do! Want to learn more?

A Care Plan is a health summary to communicate and coordinate health care needs, and may include:

Current medical information – Primary diagnosis, co-existing diagnosis; consider baseline of conditions and typical findings, such as lab work, x-rays, pathology, etc.
Medical history information
Medications – a list of medications, include over the counter medications and alternative therapies
Allergies – a list of known allergens, kept up to date.
Healthcare team members and contact information
Nutrition– includes dietary management via food, medical food, and/or supplements. Are there multiple allergies? Breastfeeding needs? Formula needs?
Social aspects– these can range from daycare, school, play dates, extracurricular, family functions. Does the child stay at home or attend daycare, etc? Who else helps care for the child? An Action Plan and/ or ER Plan developed at the doctors office can help advocate for care in the school/day care settings.
Emotional and developmental impact – Is there a need for additional referrals (such as a developmental pediatrician, therapists) and/or resources (such as school programs and early childhood screenings).
Preferences for care and typical provider protocols for treatment.
Are there pre-existing additional diagnosis/conditions that affect FPIES management?
Sick day care–may include criteria for when and where to seek emergent and non-emergent care for symptoms
Emergency care plans– providing specific guidelines for actions to be taken by family, caregivers and other healthcare professionals
Action plans– may include an action plan for managing symptoms and reactions during food trials and/or in the event of exposures to allergens.

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