At The FPIES Foundation, we not only recognize the need for research to help future children and their families, but we also recognize the need to help our families and medical professionals now by providing education, advocacy and support resources, online and in our global community.  We will:

support

Hear the voices of families and doctors,

Educate and support in order to better meet the ongoing needs of the FPIES community,

Lobby for improved standards of care in FPIES treatment, and

Provide funding for research and other professional endeavors.

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We are proud to present the nutrition professionals resource page! You will find tools and resources, such as:

Our current programs include:

  • Providing a database of FPIES-friendly Medical Providers from around the globe, for use by families seeking medical care for their children and other providers seeking professionals knowledgeable about FPIES for improved patient care. Register your name today!
  • Providing a toolbox for parents that integrates interactive tools with resources for navigating the day-to-day aspects of living with FPIES– empowering families, nurturing connections.
  • Hosting an informative website for parents of children diagnosed with FPIES, the medical community who serves them, and the global community on the whole
  • Conducting educational in-services for families and the medical community, addressing basic, up-to-date information involving FPIES recognition, diagnosis and management.
  • Providing a free Community Newsletter for newly diagnosed families.

Our future goals include:

  • Funding ongoing outreach programs for families and medical professionalsTheFPIESFoundationCommunityAwarenesscard-front
  • Lobbying appropriate organizations to create standardized protocols for effective diagnosis and treatment of FPIES.
  • Providing funding for professional efforts exploring diagnosis and management; working toward improved outcomes for this often misunderstood and misdiagnosed chronic illness
  • Supplying information at conferences and scientific meetings to further awareness and to promote FPIES education for medical professionals.DSCN5135Rackcard2013front

Foundation Medical Advisory Board: 

Educational information provided by The FPIES Foundation is fact checked for accuracy by our medical advisory board, consisting of multidisciplinary leaders in FPIES research, treatment, and support.

Sakina S. Bajowala, MD is Board-Certified in Allergy and Immunology.   Kaneland Allergy and Asthma Center is Dr.Bajowala’s pracitice in North Aurora, Illinois.

J. Andrew Bird, MD is Board-Certified in Allergy and Immunology.  Dr.Bird is an Assistant Professor of Pediatrics of the Food Allergy Center at Children’s Medical Center Dallas, Texas.

April Clark, RD/LD is a Registered and Licensed Clinical Dietitian of the Food Allergy Center at Children’s Medical Center Dallas, Texas.

Glenn T. Furuta, MD is Board certified in Pediatric Gastroenterology. Dr.Furuta is a Gastroenterologist at Children’s Hospital Colorado, a Professor of Pediatrics and the Director of the Gastrointestinal Eosinophilic Diseases Program at National Jewish Health in Denver, Colorado

Benjamin D. Gold, MD is Board Certified in Pediatric Gastroenterology.  Dr. Gold is a Gastroenterologist at Children’s Center for Digestive Healthcare, LLC (GI Care for Kids) in Atlanta, Georgia.

Harumi Jyonouchi, MD is Board-Certified in Allergy and Immunology.  Dr. Jyonouchi is researcher who sees her patients at Children’s Hospital at Saint Peters’ University Hospital in New Bruinswick, New Jersey.

Bailey Koch, RD, CSP, LD is a Registered and Licensed Dietitian.   Bailey is a Board Certified Specialist in Pediatric Nutrition and successfully completed the ELL Foundation PAC Food Allergy and Intolerance Training Certification for Dietitians. She is a part of the team at Children’s Center for Digestive Healthcare and Atlanta Pediatric Nutrition, Inc. in Atlanta, Georgia.

John J. Lee, MD is Board-Certified in Allergy and Immunology.  Dr. Lee is a Co-Director of the EGID Program (Eosinophilic Gastrointestinal Disorders) at Children’s Hospital Boston, Massachusetts.

Fred Leickly, MD, MPH is Board-Certified in Allergy and Immunology.   Dr.Leickly is a Professor of Clinical Pediatrics at James Whitcomb Riley Hospital for Children at Indiana University School of Medicine in Indianapolis, Indiana.

Tara McCarthy, MS, RD, LDN is a Registered Dietitian and Licensed Clinical Nutrition specialist in  The Nutrition Center and Eosinophilic Gastrointestinal Disease (EGID) program at Boston Children’s Hospital. Tara is also an Instructor at Northeastern University in Boston, Massachusetts.

David R. Naimi, DO is Board-Certified in Allergy and Immunology.  Dr. Naimi is an Allergist at Northwest Asthma & Allergy Center and is a Clinical Assistant Professor of Pediatrics affiliated with Seattle Children’s Hospital. His practice is based in Everett, Washington.

Sergio Negre Policarpo, MD, PhD. is the head of the Pediatric Gastroenterology and Nutrition Unit at Quiron Valencia Hospital Pediatric Department- UPIQ (Valencia, Spain) and an Associate Clinical Professor at Catholic University of Valencia, Spain.

Wayne Shreffler, MD, PhD is Board-Certified in Pediatric Allergy and Immunology and Chief of Pediatric Allergy & Immunology at Massachusetts General Hospital   Dr.Shreffler is an Associate Professor of Pediatrics at Harvard Medical School; Director of The Food Allergy Center;  and Principal Investigator of the Center for Immunology and Inflammatory Diseases at Massachusetts General Hospital , Massachusetts.

Luqman Seidu, MD is Board-Certified in Pediatrics and Allergy and Immunology.  Dr. Seidu is an Allergist at Georgia Allergy, Immunology and Asthma and Adjunct Professor in Atlanta, Georgia.

Qian Yuan, MD, PhD is a Board-Certified Pediatrician in Pediatric Gastroenterology and Nutrition.  Dr.Qian Yuan is a Clinical Director at Massachusetts General Hospital Food Allergy Center and an Assistant Clinical Professor in the Department of Pediatrics at Harvard Medical School Boston, Massachusetts.

Why are you seeing polls at The FPIES Foundation’s site?

  • Polls will help us get to know you and your clinical practice better!
  • Polls will help us to get a clearer picture of how children affected by FPIES and their families are seen in a clinical setting
  • Polls will help to capture key factors involved in the clinician/patient/family dynamic and how they relate to the diagnosis of FPIEStransparent logo TFF
 Have a suggestion for a poll? Contact us today!
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 Like what you see? There is more to come! Keep checking back for updates— this section will be expanding soon!! Are you a medical provider and interested in being a part of these updates? Connect with us today at contact@thefpiesfoundation.org to learn ways that you can help!
 

Page published: June 3, 2012. Last update: May 1, 2016. Copyright © 2012,The FPIES Foundation