This year we celebrate our fourth annual Global FPIES Day, a time for our global community of families, practitioners, researchers and patient advocates to come together in the name of taking big steps for FPIES awareness.

Join us in sharing print resources, educational videos, and inspirational family stories to promote FPIES awareness in your local communities and beyond!

Write to us at contact@thefpiesfoundation.org to request resources or information on how you can spread awareness this October 14th!

Join Heather Martin, FPIES mom and Registered Dietitian, as she explores five common myths related to Food Protein Induced Enterocolitis Syndrome (FPIES).

For full credits, please visit our youtube channel

Step Up the Conversation

FPIES is a rare condition and raising awareness is essential!

Awareness helps to inspire medical practitioners to educate themselves about FPIES care management, to encourage researchers to examine mechanisms and potential causes, and to motivate communities to get creative in how they accommodate individuals with food allergies in schools, recreation centers, and community events.

Awareness can help our children to have better community and medical supports to help prevent emergencies and to better respond to emergencies when they do happen. 

Spark the conversation on social media with these tips and resources!

Dr. Jeanelle Boyer, a professor at Keene State College, continues to research the microbiome in the gut of infants affected by FPIES. Watch her latest update and learn more about her continued research today! 

For more information, please visit our youtube channel

Awareness can be part of our daily lives!

Pack FPIES awareness business cards in your diaper bag for a moms’ group, or drop off some FPIES rack cards to the EMTs at the fire department when you take your child to meet the firefighters. Kids can follow the path to advocacy, too! For older children, you can teach them how to advocate for themselves in school, on sports teams, and beyond.

Always be at the ready to share information about FPIES– the more informed our communities are, the more protected and included our children can be in day-to-day activities!

Walk the Walk

Go the Distance

Awareness on a local platform is powerful, awareness on a national and global scale can be life-changing for the entire FPIES community.

So where do we start?

  • Participate in the Global FPIES Patient Registry at www.FPIESregistry.com to share insights with the medical and research community through medically-backed surveys
  • Connect with local hospitals, parent groups and local school officials and share information about FPIES
  • Connect with state and federal government officials to share your family’s FPIES story in the context of supporting legislation to guarantee elemental formula coverage
  • Participate in the annual Rare Artist Contest (headed by The EveryLife Foundation for Rare Diseases) and create art work to raise awareness of FPIES. Kids and adults can participate! 
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Disaster & Emergency Readiness

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504 Document Planning for School

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Awareness & Event Planning

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Creating Custom Recipes

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Vacation & Travel Planning

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Thank you to all of our partners who support The FPIES Foundation and the families, practitioners and communities that we serve. Because of this support for awareness, and because of the activities of our partners that further the mission of FPIES education, research and advocacy, our FPIES community will continue to grow and better serve individuals affected by FPIES, worldwide. We are proud to be taking #Steps4FPIES together!

Children’s Medical Nutrition Alliance (CMNuA) 

Allergy and Immunology Foundation Australia (AIFA)

 MyKidsFoodAllergies

Food Allergy and FPIES Mommy

 

Hopecentric  
 

 

Big Little Mommy