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Our Blog -A Network of Caring

Helping families

Interview with Making Do Recipes!

Making Do Recipes: FPIES, MCAS, EoE, Allergy Recipe Finder Tell us a little about your background and your aim to provide allergy friendly recipes: Our son, Elisha, started his life in the NICU due to breathing difficulties and low oxygen, Read more…

By thefpiesfoundation, 2 yearsAugust 1, 2021 ago
Helping families

New Formula Options for Families: Interview with Cambrooke.

We, at The FPIES Foundation, are excited to tell you about some new amino-acid formula options! We sat down with April Clark and Kelli Miller, both Registered Dietitians and Clinical Specialists in GI & Allergy for Cambrooke, to talk about Cambrooke’s mission and their new amino acid-based formulas, EquaCare Jr. and Essential Care Jr.

By thefpiesfoundation, 2 yearsJune 6, 2021 ago
Helping families

Bluberry Chia Jam by Chef Jerran Boyer

If blueberries are totally your jam, then you’ll like this Roasted Blueberry + Chia Seed Jam recipe. It’s easy to make, flavorful, and healthier than store bought jams and jellies (bonus!).

By thefpiesfoundation, 2 yearsMay 23, 2021 ago
Helping families

Introducing: Book Creator!

The resource is called “Book Creator;” some of you (particularly teachers!) may already be familiar with this program. We have established a virtual “library” at The FPIES Foundation’s Book Creator page and are now inviting families to create FPIES-themed books for themselves and for the library!

By thefpiesfoundation, 2 yearsMay 13, 2021 ago
Helping families

Researchers are Listening for Your Voice!

The FPIES Foundation Partners with My PaTH Story Booth Post written by Amanda LeFew, Co-Director at The FPIES Foundation Select content in this article was used with permission from the My PaTH Story Booth’s website You have often heard us Read more…

By thefpiesfoundation, 2 yearsMay 10, 2021 ago
Helping families

Why We Need to Stop Referring to IgE-Mediated Allergies as ‘True’ Food Allergies

This is an open letter to all healthcare professionals from a food allergy mama and Registered Dietitian. I am writing to you as a mother to children with both IgE mediated and non-IgE mediated food allergies. As many of you are aware, allergic Read more…

By thefpiesfoundation, 2 yearsMay 4, 2021 ago
Living with FPIES

Rare Disease Day 2021

Do you ever wish you had more opportunities for raising awareness about FPIES? Are you ever unsure of where to get started with raising awareness? The last day of February each year is “Rare Diseases Day;” this awareness day sponsored Read more…

By thefpiesfoundation, 3 yearsFebruary 16, 2021 ago
Helping families

Happy 2021 to All!

Happy 2021 to all! Now a full month into our New Year, we want to invite our community to join us in resolutions to spread FPIES education and awareness throughout 2021! With the state of the pandemic and many of Read more…

By thefpiesfoundation, 3 yearsFebruary 2, 2021 ago
FPIES Registry

FPIES and the Microbiome – Newest Survey on The Global FPIES Patient Registry!

With a vision to learn more about the microbiome and its potential impact on individuals affected by FPIES, we invite you back to our Global FPIES Patient Insights Network (www.fpiesregistry.com), through our partnership with Invitae, to complete the latest patient Read more…

By thefpiesfoundation, 3 yearsDecember 29, 2020 ago
Living with FPIES

Holiday Baking: Family Traditions & FPIES

The temperature is changing, school breaks are coming, and its back to planning for those special holidays again! This year, things certainly may look a bit different, as many of us are opting to stick around the house and celebrate Read more…

By thefpiesfoundation, 3 yearsDecember 14, 2020 ago

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The FPIES Foundation is an Incorporated 501(c)(3) Non-Profit organization. The FPIES Foundation does not provide medical advice, diagnosis or treatment. Information provided is intended for supportive, awareness and educational purposes and not as medical advice.


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