FPIES: Caring for the Caregiver Nichole L. Huff, Ph.D., CFLE Recently I read an article by the Family CaregivingAlliance on caregiver stress. As an introduction to the topic, the author compared the need to reduce caregiver stress to the safety rules given just before takeoff on an airplane—the ones that instruct Read more…
FPIES: A Diagnosis, not a Definition Nichole L. Huff, Ph.D., CFLE As Thanksgiving Day draws near, Facebook and other social media outlets are abuzz with people sharing blessings in their lives. For things both big and small, people are talking about thankfulness. For parents of children with FPIES, however, the anticipation Read more…
Any time someone has a chronic health condition, they are usually encouraged to join a support group. Such groups have a reputation for encouragement, empowerment, and education, and those things are vital to the survival of a major health concern. FPIES is no different. Living with FPIES can be confusing, Read more…
Living with FPIES: Advocating for Your Child in School and Childcare Settings Nichole L. Huff, Ph.D., CFLE As a mom of a child with FPIES, one of the hardest decisions I ever made was entrusting someone else to care for my son, living with FPIES, for the first time. And, truthfully, Read more…
It’s back to school time. Time for school supplies and new backpacks, new clothes and fresh haircuts. For families living with FPIES, back to school time means something else. Time to worry if your child is safe at school. Time to worry about every birthday treat, special snack or basic lunch Read more…
Our FPIES Story Nichole L. Huff, Ph.D., CFLE My firstborn was a textbook baby, which was fitting because I prepped for motherhood as best I knew how—I studied. I read parenting magazines and child development books and perused baby websites. Surely my daughter read them too, never missing a Read more…
February is Dental Health Awareness Month. Planning for your child’s first dental exam can feel like a daunting task, especially if your child suffers from food allergies. Below are some tips to consider prior to the first visit. 1. When scheduling the appointment, be sure to inform the office of Read more…
Avoiding and Addressing Oral Texture Aversion Written by: Annette Mestern, OTR/L I am the mother to a two year old with Food Protein Induced Enterocolitis Syndrome (FPIES). I am also a Pediatric Occupational Therapist (OT). When my daughter was 10 months old her allergist recommended a period of time without any Read more…
Tax season is approaching. A fellow FPIES family has shared this wonderful resource for some important information that may be helpful to your family. “The IRS extends a tax relief in cases of food allergies. The tax man will allow you a tax break if you prove that you are Read more…