Talking about FPIES is a 3-part blog series by Angelika Sharma, FPIES Foundation volunteer. How to Explain FPIES to Others As the parent or caregiver to a child with FPIES, you regularly find yourself having to explain the needs of your child: first with family and friends, then in places Read more…
Recently, we learned of a parenting book for parents of children diagnosed with FPIES. We had an opportunity for an interview with author, Angelika Sharma, and here is what she shares about her book, “A Mother’s Guide to FPIES”. Tell us a little about your book and your aim in Read more…
Planning Your Summer Adventures, When FPIES is Your Uninvited Travel Companion Backpacks are starting to gather dust, you’ve inflated the kiddie pool . . . . summer must be here! At our house, we are always thrilled for the arrival of summer. It allows us to take a breath, stock Read more…
A FARE Collaborator blog Most of us don’t think twice about going on vacation or attending neighborhood barbecues, but for people managing food allergies, having others provide meals requires extra vigilance and planning. Those not living with food allergies are typically unaware of how easily and quickly an otherwise safe Read more…
I sat nervously at the conference table, introducing myself to a room of new faces, new faces that I sincerely hoped would help to make accommodations for my daughter when she entered kindergarten in the next year. I had reason to be nervous—we had never found a preschool willing to Read more…
From every corner of our world, COVID-19 has impacted us all in one way or another. As I sit here in my living room, in a state particularly hard hit, the evidence of this impact is all too clear. The stress, the risk of catching this illness, the changes in Read more…
Planning meals for children can be challenging. You have to come up with a dish that is not only appealing to them but is also packed with nutritious ingredients that sometimes your child probably doesn’t like, and these difficulties grow tenfold when it comes to prepping meals for children with Read more…
We are so excited to share with you that a children’s book about life with FPIES was recently published! The book, “FPIES – The Mystery that Made My Brother Sick“, was written by a fellow parent of a child living with FPIES and is a real-life story about her son. Read more…
This spiral-bound Workbook was created specifically for families managing FPIES, to help parents and caregivers stay organized and keep track of everything in one place!
Rare in How We Care The theme of this year’s Rare Diseases Day was “Show Your Stripes.” I was so excited when I first learned this– I feel like this theme really reflects our rare community, particularly our FPIES community, where I see all of you showing your stripes each Read more…