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FPIES Awareness

Helping families

Introducing: Book Creator!

The resource is called “Book Creator;” some of you (particularly teachers!) may already be familiar with this program. We have established a virtual “library” at The FPIES Foundation’s Book Creator page and are now inviting families to create FPIES-themed books for themselves and for the library!

By thefpiesfoundation, 2 yearsMay 13, 2021 ago
Helping families

Happy 2021 to All!

Happy 2021 to all! Now a full month into our New Year, we want to invite our community to join us in resolutions to spread FPIES education and awareness throughout 2021! With the state of the pandemic and many of us being homebound, outreach may be a bit of a Read more…

By thefpiesfoundation, 2 yearsFebruary 2, 2021 ago
Living with FPIES

Allies for FPIES – Global FPIES Day 2020 Success!

Global FPIES Day is honored on Oct. 14th every year. Established in 2014, this day is set by The FPIES Foundation to recognize Food Protein-Induced Enterocolitis Syndrome (FPIES) while empowering those living with the diagnosis by providing tools, support, and resources for every day.  It is also a day when Read more…

By thefpiesfoundation, 3 yearsOctober 29, 2020 ago
Helping families

No Day at the Beach: A Doc Mom’s FPIES Journey

A guest post by Laura Benjamin, MD. No one expects to find themselves in the back of an ambulance with their six month old baby during a relaxing Florida vacation, but that’s exactly where I ended up. My husband and I, both doctors, and three other couples, all also doctors, Read more…

By thefpiesfoundation, 3 yearsJuly 1, 2020 ago
Helping families

COVID Conversations– Through an FPIES Lens: Food Labels.

From every corner of our world, COVID-19 has impacted us all in one way or another. As I sit here in my living room, in a state particularly hard hit, the evidence of this impact is all too clear. The stress, the risk of catching this illness, the changes in Read more…

By thefpiesfoundation, 3 yearsMay 28, 2020 ago
Helping families

5 Unexpected Ways to Help School Children Living With FPIES

Planning meals for children can be challenging. You have to come up with a dish that is not only appealing to them but is also packed with nutritious ingredients that sometimes your child probably doesn’t like, and these difficulties grow tenfold when it comes to prepping meals for children with Read more…

By thefpiesfoundation, 3 yearsFebruary 2, 2020 ago
Helping families

A Peek Into ‘FPIES – The Mystery that Made My Brother Sick’, a Children’s Book

We are so excited to share with you that a children’s book about life with FPIES was recently published! The book, “FPIES  – The Mystery that Made My Brother Sick“, was written by a fellow parent of a child living with FPIES and is a real-life story about her son.  Read more…

By thefpiesfoundation, 3 yearsJanuary 19, 2020 ago
In The News

Our Top 10 FPIES Medical Literature Articles from 2019

We, at The FPIES Foundation, love to follow the research!  These are our top 10 picks for FPIES articles of 2019 (in no particular order).  Each of these articles brings some new data or novel idea to the ‘table’.  We are so thankful to all of the practitioners and researchers Read more…

By thefpiesfoundation, 3 yearsDecember 27, 2019 ago
Inspirational stories

Rare in How We Care

Rare in How We Care The theme of this year’s Rare Diseases Day was “Show Your Stripes.” I was so excited when I first learned this– I feel like this theme really reflects our rare community, particularly our FPIES community, where I see all of you showing your stripes each Read more…

By thefpiesfoundation, 4 yearsMarch 27, 2019 ago
FPIES Registry

Better Together: Connecting Families and Doctors to Understand FPIES

This gap between patients and clinicians was evident upon my son’s diagnosis, but was becoming more clear the more we learned about FPIES. Fortunately, the FPIES Foundation created the FPIES Global Patient Registry

By thefpiesfoundation, 4 yearsFebruary 7, 2019 ago

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The FPIES Foundation is an Incorporated 501(c)(3) Non-Profit organization. The FPIES Foundation does not provide medical advice, diagnosis or treatment. Information provided is intended for supportive, awareness and educational purposes and not as medical advice.


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