Rare Diseases Day Awareness Success!

Food Protein Induced Enterocolitis Syndrome (FPIES) is a recognized rare diagnosis – globally.  From Rare Diseases Day, “A rare disease is defined as rare in the USA when it affects fewer than 200,000 Americans at any given time, and rare in Europe when it affects fewer than 1 in 2000“. “Alone we are rare, […]

Rare Diseases Day 2013

Rare Diseases Day International theme for 2013 was “Rare Disorders Without Borders”.  With continued increased awareness, the FPIES community will continue to break down these borders- not only connecting us across miles (and countries) also between patient and practitioner, researcher, schools, childcare, and all aspects of our children’s lives that […]