The FPIES Foundation has joined forces with 30 million Americans and health care advocates around the world for Rare Disease Day® on February 28.  Rare Disease Day is an annual awareness day dedicated to elevating public understanding of rare diseases and calling attention to the special challenges people face.

For this 10th Rare Disease Day, we compiled a list of our top 10 things you can do to help spread awareness this Rare Diseases Day:

#1. Share a Rare Disease Fact on social media.

#2. Print and color a rare disease day coloring page and share it with facts about FPIES in your community or on social media.

#3. Share a medical journal article on FPIES research from our Medical Literature page.

#4. Change your profile and banner pictures on social media to show your support.

#5. Challenge family and friends to join in raising awareness and share our “FPIES: Now you Know video

#6. Learn and share about the importance of patient registries and their role in  the advancement of understanding of rare disease with our “FPIES At a Crossroads” Global FPIES Day webinar.

#7. Host an awareness event in your community. Not sure where to start?

#8. Tell Your Story

#9.Share The Mighty’s “19 Secrets Families with FPIES Wish Others Knew

#10.  Follow us on social media for our daily updates on staying involved!

For more information about Rare Disease Day in the U.S., go to  For information about global activities, go to

This post was written by the FPIES Foundation Board.