Families living with FPIES were offered a rare treat in Boston, the chance to meet each other face to face and ask Allergy experts questions about the latest research and treatments available! Boston Children’s Hospital Hosted the event on Saturday, September 28, 2013. It was free to any family with a Read more…
Any time someone has a chronic health condition, they are usually encouraged to join a support group. Such groups have a reputation for encouragement, empowerment, and education, and those things are vital to the survival of a major health concern. FPIES is no different. Living with FPIES can be confusing, Read more…
Living with FPIES: Advocating for Your Child in School and Childcare Settings Nichole L. Huff, Ph.D., CFLE As a mom of a child with FPIES, one of the hardest decisions I ever made was entrusting someone else to care for my son, living with FPIES, for the first time. And, truthfully, Read more…
Our Families’ Beginnings: Joy’s family: Our son, Samuel, was sick for months before we knew his symptoms had a name. Food Protein Induced Enterocolitis Syndrome is what the allergist confirmed after months of trying to pinpoint it on our own, with just the Pediatrician and Dietitian help. We had been Read more…
The FPIES Foundation Celebrates Anniversary with Huge Social Media Awareness Day Allows families to Text-A-Wish to support Foundation’s Efforts August 25, 2013: The FPIES Foundation is excited to celebrate its second anniversary of empowering, educating and helping families navigate Food Protein Induced Enterocolitis Syndrome, or FPIES. The Foundation is planning a Read more…
It’s back to school time. Time for school supplies and new backpacks, new clothes and fresh haircuts. For families living with FPIES, back to school time means something else. Time to worry if your child is safe at school. Time to worry about every birthday treat, special snack or basic lunch Read more…
Our FPIES Story Nichole L. Huff, Ph.D., CFLE My firstborn was a textbook baby, which was fitting because I prepped for motherhood as best I knew how—I studied. I read parenting magazines and child development books and perused baby websites. Surely my daughter read them too, never missing a Read more…
Cooking with FPIES in mind can be quite an adventure! When using substitutions and often uncommon ingredients, there can be a steep learning curve involved in figuring out how to turn safe ingredients into a variety of interesting dishes and baked goods. Fear not! Head over to the Cooking and Nutrition section Read more…
As May began, the FPIES Foundation initiated the Twitter campaign #IKNOWNOWFPIES in honor of Food Allergy Awareness Week. We asked FPIES families to tell us what they know now that they didn’t know when their child was diagnosed. From the first “I know now” post – “I didn’t know that you could have a delayed Read more…
There are many ways to raise awareness. When explaining FPIES to your child’s pediatrician, you are raising awareness. When you sit down with your child’s daycare provider to explain safety precautions necessary to keep your child as free from reactions during the day, you are raising awareness. The setting doesn’t Read more…