Evan was born in May 2011. His life with FPIES really started on day one at the hospital, but we did not have a diagnosis until he was 7 months old. He was a tiny baby and always hungry. I nursed him for 13 months, along with supplement from day […]
News and Events Oct. 14, 2017: Global FPIES Day is TODAY! We established this day to share resources with you to build awareness to FPIES all year long! Oct. 13, 2017: Dr. Boyer provides the FPIES community with an update on her latest and continued research on FPIES and the […]
Ellie was ‘colicky’ from birth. We were sent home from the hospital with the instructions that she is ‘just one of those babies that refluxes’ and to ‘be sure and lay her on her side’ so that she does not ‘choke or aspirate on her own vomit’. More than half […]
Our FPIES story started out like so many others. My son Brendan was exclusively breastfed until 6 months of age and then we introduced rice cereal. He tolerated it in large amounts for the first two weeks before he had his first reaction. It was the holidays and we flew […]
Carter was born in May of 2009. He was born at 35 weeks, which classified him as “near term”. I was on modified bed rest for over a month due to early contractions. His labor was pretty uneventful. After he was born, we were able to give him hugs and […]
Inspiring Families This page is dedicated to sharing stories of the journey of our FPIES families. Sharing both our trials and successes gives a voice to all those struggling with this invisible diagnosis, and is a valuable tool for other families as well. This is a unique opportunity for families […]