Before I had kids, I always assumed we’d be one of those families that were always on the go – playing at parks, exploring our neighborhood, doing fun outings like museums and the zoo. And then, you know, FPIES. Without getting into too much detail (let’s just say the words Read more…
Paying Medical Bills as Simply as Possible By Margaret Hancock For those navigating FPIES – or any rare disease – hospital, specialist, nutritional, and additional medical bills can be quite confusing and time-consuming. I am grateful for a brief stint that I had with an insurance firm as I learned through Read more…
We thank you for making every step count by joining with us in our ongoing efforts to build awareness, increase support and advance research for individuals affected by Food Protein-Induced Enterocolitis Syndrome (FPIES) for our 4th annual Global FPIES Day. This Global FPIES Day, we witnessed so many #Steps4FPIES! Whether Read more…
Halloween is one of my favorite days of the year. I love holidays in general, and even though Christmas will always have a special place in my heart, there are some pretty big expectations wrapped up (pun intended) around December 25. Big extended-family get-togethers, possibly involving travel, a fancy dinner Read more…
There are many ways to raise awareness. When explaining FPIES to your child’s pediatrician, you are raising awareness. When you sit down with your child’s daycare provider to explain safety precautions necessary to keep your child as free from reactions during the day, you are raising awareness. The setting doesn’t Read more…
Awareness is Action, and YOU help pave the path! At The FPIES Foundation, we recognize and stress the importance of awareness for this rare disorder. Because FPIES is rare, families can experience difficulty finding medical providers that are familiar with this diagnosis, and can receive poor advice from well-meaning friends Read more…