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FPIES The FPIES Foundation

Helping families

Happy 2021 to All!

Happy 2021 to all! Now a full month into our New Year, we want to invite our community to join us in resolutions to spread FPIES education and awareness throughout 2021! With the state of the pandemic and many of us being homebound, outreach may be a bit of a Read more…

By thefpiesfoundation, 4 yearsFebruary 2, 2021 ago
Helping families

A Peek Into ‘FPIES – The Mystery that Made My Brother Sick’, a Children’s Book

We are so excited to share with you that a children’s book about life with FPIES was recently published! The book, “FPIES  – The Mystery that Made My Brother Sick“, was written by a fellow parent of a child living with FPIES and is a real-life story about her son.  Read more…

By thefpiesfoundation, 5 yearsJanuary 19, 2020 ago
Helping families

200 Free Custom Wristband Contest!

Raise Awareness to FPIES with custom wristbands! With food allergy and FPIES allergy education and awareness days approaching, wristbands can be a great way to wear your awareness. We have teamed up with WristbandBros.com to give one lucky family living with FPIES a chance to win 200 free wristbands and a free design consultation! Read more…

By thefpiesfoundation, 10 yearsApril 15, 2015 ago
Support our Cause

Rare Diseases Day 2015: Living with a Rare Diagnosis

Every year, we participate with the Rare community to celebrate Rare Disease Day! This annual global event on the last day of February aims to, “raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives”. (What is a Rare Disease) The theme for Rare Disease Day 2015 Read more…

By thefpiesfoundation, 10 yearsFebruary 9, 2015 ago
FPIES Registry

The FPIES Global Patient Registry: Getting to Know Connect

The FPIES Global Patient Registry Getting to Know CONNECT Part 3 of 3 in Registry Series What defines the CONNECT program? Patient Crossroads’ CONNECT program is, “a registry platform, which allows patients around the world to join others in reporting their own experience of disease.”– From the Patient Crossroads Advocacy Brochure According Read more…

By thefpiesfoundation, 11 yearsJuly 29, 2014 ago
FPIES Registry

The FPIES Global Registry: Getting to Know the Patient Registry

The FPIES Global Registry Getting to Know the Patient Registry Part 2 of 3 in Registry Series What is a Patient Registry? Also referred to as a “disease registry” or “clinical registry,” a Patient Registry is a program that collects and stores data related to health information for a specific purpose and in Read more…

By thefpiesfoundation, 11 yearsJuly 21, 2014 ago
In The News

Feeding Tube Awareness Week 2014

Feeding Tube Awareness Week®, launched in 2011 by the Feeding Tube Awareness Foundation, is a unique opportunity to raise awareness about feeding tubes. There are several reasons a child may need a feeding tube.  Food allergies can be one of those reasons and some infants/children living with Food Protein Induced Enterocolitis Syndrome Read more…

By thefpiesfoundation, 11 yearsFebruary 10, 2014 ago
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The FPIES Foundation is an Incorporated 501(c)(3) Non-Profit organization. The FPIES Foundation does not provide medical advice, diagnosis or treatment. Information provided is intended for supportive, awareness and educational purposes and not as medical advice.


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