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GRDR

FPIES Registry

The FPIES Global Patient Registry: Getting to Know Connect

The FPIES Global Patient Registry Getting to Know CONNECT Part 3 of 3 in Registry Series What defines the CONNECT program? Patient Crossroads’ CONNECT program is, “a registry platform, which allows patients around the world to join others in reporting their own experience of disease.”– From the Patient Crossroads Advocacy Brochure According Read more…

By thefpiesfoundation, 11 yearsJuly 29, 2014 ago
FPIES Registry

The FPIES Global Registry: Getting to Know the Patient Registry

The FPIES Global Registry Getting to Know the Patient Registry Part 2 of 3 in Registry Series What is a Patient Registry? Also referred to as a “disease registry” or “clinical registry,” a Patient Registry is a program that collects and stores data related to health information for a specific purpose and in Read more…

By thefpiesfoundation, 11 yearsJuly 21, 2014 ago
FPIES Registry

The FPIES Global Patient Registry: An Introduction and Overview

The FPIES Global Patient Registry An Introduction and Overview Part 1 of 3 in a Registry Series In November 2013, we at The FPIES Foundation presented the first-of-its-kind FPIES Global Patient Registry, via the Patient Crossroads CONNECT program. Some Key Terms: Patient Registry: Also referred to as a “disease registry” or “clinical registry,” Read more…

By thefpiesfoundation, 11 yearsJuly 8, 2014 ago
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The FPIES Foundation is an Incorporated 501(c)(3) Non-Profit organization. The FPIES Foundation does not provide medical advice, diagnosis or treatment. Information provided is intended for supportive, awareness and educational purposes and not as medical advice.


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