August 31st marks the day The FPIES Foundation was launched. For 13 years, The FPIES Foundation has been committed to providing a credible and interactive support resource for this easily misunderstood allergic disorder to make the everyday lives of those living with Food Protein-Induced Enterocolitis Syndrome just a little bit Read more…
While attending an online event, Aspen Ideas: Health 2022, there was a discussion panel on the topic, “Partnering with Patients Strengthens Science”. One of the panelists, Sneha Dave, in discussing the importance of the condition community, said these words: “One thing we can’t forget – while we are waiting for a Read more…
Talking about FPIES is a 3-part blog series by Angelika Sharma, FPIES Foundation volunteer. How to Explain FPIES to Others As the parent or caregiver to a child with FPIES, you regularly find yourself having to explain the needs of your child: first with family and friends, then in places Read more…
Caregiver Anxiety and FPIES A guest post written and submitted by Mun Cho, Registered Dietitian and Food Allergy Parent. FPIES (Food Protein-Induced Enterocolitis Syndrome) is a non-IgE food allergy, which is different from the IgE-mediated food allergy that could potentially be anaphylactic. Acute FPIES involves excessive vomiting, which could lead Read more…
Recently, we learned of a parenting book for parents of children diagnosed with FPIES. We had an opportunity for an interview with author, Angelika Sharma, and here is what she shares about her book, “A Mother’s Guide to FPIES”. Tell us a little about your book and your aim in Read more…
Traveling to Walt Disney World with FPIES By: LL McKenzi Soon after packing up and moving our family south, life turned upside down as our infant son was diagnosed with Food Protein-Inducted Enterocolitis Syndrome (FPIES). We were one of the first families here in the upstate of South Carolina to Read more…
March 30th was National Doctors’ Day. Doctors across our country were recognized for the dedicated and tireless work they do each day. Everyday, we acknowledge and appreciate the contributions of the many great practitioners that support our children and families affected by FPIES. We’d like to suggest some fun ways to show Read more…
Have you ever looked back upon your life and been in awe as to how everything seems to have worked out for some higher purpose? I am still amazed at how many of my life choices were, unknowingly, preparing me to be the mom of an FPIES baby. A PhD Read more…
I was working on my master’s degree in health communication when I met my husband. Fast forward a year and a half later, I was sitting in the NICU with our newborn daughter feeling like I should have paid more attention to the practical aspects of the degree I had Read more…
The FPIES Foundation joined as the National Organization forRare Diseases (NORD) andTexas Children’s Hospital hosted a Twitter Chat aimed at helping navigate emergency room visits with a Rare Disease. NORD started the chat with some statistics that show rare diseases aren’t that rare. They say 1 in 10 Americans are affected by some sort Read more…